Books By CAC2 Members


Welcome to the CAC2 Book Page, the home of books written by our talented members.

The books listed include non-fiction and fiction works for all ages. Members with books should email books@cac2.org to have your book added to this page.






By Esther Earl, Lori Earl and Wayne Earl

Purchase: Amazon; Barnes & Noble

ABOUT: This Star Won’t Go Out

New York Times Bestseller!

“This moving read will have you reaching for the tissues and smiling with delight….Stunningly alive on the page, Esther shows that sometimes the true meaning of life—helping and loving others—can be found even when bravely facing death.” –People Magazine, 4 stars.

In full color and illustrated with art and photographs, this is a collection of the journals, fiction, letters, and sketches of the late Esther Grace Earl, who passed away in 2010 at the age of 16. Essays by family and friends help to tell Esther’s story along with an introduction by award-winning author John Green who dedicated his #1 bestselling novel The Fault in Our Stars to her.

ABOUT THE AUTHORS:

Wayne and Lori Earl are the parents of the late Esther Earl and founders of the non-profit organization, This Star Won’t Go Out whose mission is to financially assist families struggling through the journey of a child living with cancer. To date, TSWGO has given away more than $500,000 to families in need.


By Joe Dean; Illustrator Lauren Curwick

Purchase: Amazon;

ABOUT: My Dog Named Hope

My Dog Named Hope is a shining example of an innocent child, facing a difficult disease with grace and determination beyond her years. The greatest gift we can give is hope and through this book, all of us who have been touched by the illness of a loved one can relate to the importance of compassion and the unconditional love we owe to those in need. With each turn of the page, our hope for Lindsay grows, gently teaching us the need for faith. A true gift for all ages for years to come.

This is a wonderful book to help children (and those who love them) better understand cancer while assuring them that they are not alone. As the story unfolds, comfort comes to Lindsay by way of a dog named Hope and progresses into emotional healing as Lindsay reaches out to other children with a determination to help them. We could all learn from this heart-warming story.

100% of proceeds go to pediatric cancer research and services, specifically the MACC Fund and Designing Dreams.

ABOUT THE AUTHOR:

Guinness World Record holder. Founder: Stars and Stripes Honor Flight. Childhood cancer Cure Strategy advocate. Addicted to long distance runs in my Home Port. Also co-authored book: Honor Flight a Visual Journey. Humbled by so many authentic and brave Dragon Slayers in the pediatric cancer community.


By Nancy Keene

Purchase: Amazon; Barnes & Noble In bulk at reduced prices: Josh Rowe jrowe@ipgbook.com

ABOUT: Childhood Leukemia-A Guide for Families, Friends & Caregivers

This comprehensive guide covers acute lymphoblastic leukemia (ALL), acute myeloid leukemia (AML), chronic myelogenous leukemia (CML), and juvenile myelomonocytic leukemia (JMML). It contains essential information that families and friends need after diagnosis, including how to: understand the diagnosis; get excellent treatment; cope with side effects; find emotional support; identify helpful resources.

After diagnosis, families have a huge need for accurate information and a steep learning curve. To help them cope, our book contains easy-to-understand text that has been reviewed by distinguished experts in childhood cancer. Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 170 children with leukemia, their siblings, and their parents.

ABOUT THE AUTHOR:

Nancy Keene is the mother of a long-term survivor of high-risk ALL. A well-known writer and advocate for children with cancer, she has written many books about childhood cancer. Her work has appeared in Reader’s Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. She was the first chair of the Children’s Cancer Group (CCG), Patient Advocacy Committee (PAC), and the first chair of the PAC of the Children’s Oncology Group (COG).


By Anne Spurgeon and Nancy Keene

Purchase: Amazon; Barnes & Noble In bulk at reduced prices: Josh Rowe jrowe@ipgbook.com

ABOUT: Childhood Cancer-A Parents Guide to Solid Tumor Cancers, 3rd Ed.

Each year more than 6,000 children and teens in the United States are diagnosed with a solid tumor (e.g., kidney tumor, liver tumor, neuroblastoma, retinoblastoma, or sarcoma). This newly updated edition contains essential information families need from diagnosis through survivorship. It includes descriptions of the newest treatments, such as computer-assisted surgery, tandem stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances.

Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 150 children with solid tumors, their siblings, and their parents. The text was reviewed by renowned experts in pediatric oncology, and the foreword was written by Garrett Brodeur, MD, Co-director of the Division of Oncology, Director of the Center for Childhood Cancer Research, and Director of the Hereditary Cancer Predisposition Program, Children’s Hospital of Philadelphia.

ABOUT THE AUTHORS:

See Nancy Keene’s bio for Childhood Leukemia book, (above). Anne Spurgeon, trained as a historian at the University of Wisconsin, is the parent of a long-term survivor of rhabdomyosarcoma, a soft tissue sarcoma. For more than 15 years, she served as the executive director of the Badger Childhood Cancer Network in Madison, Wisconsin. Its mission is to educate, support, serve, and advocate for children with cancer, their families, survivors of childhood cancer, and the professionals who care for them. Anne enjoys having adventures with her three young adult children; kayaking the beautiful lakes of Wisconsin; reading history, anthropology, and science; and making and drinking craft beer.


By Tania Shiminski-Maher, Catherine Woodman, MD, Nancy Keene

Purchase: Amazon; Barnes & Noble In bulk at reduced prices: Josh Rowe jrowe@ipgbook.com

ABOUT: Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends & Caregivers, 2nd Ed.

This comprehensive parent guide covers medulloblastoma, astrocytoma, primitive neuroectodermal tumors (PNET), brainstem gliomas, hypothalamic gliomas, atrypical teratoid/rhabdoid tumor (AT/RT), ependymomas, craniopharyngiomas, germ cell tumors, and choroid plexis tumors. It contains essential information that families and friends need during this difficult time, including how to: understand the diagnosis; get excellent treatment; cope with side effects; find emotional support; and identify helpful resources.

Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 120 children with brain or spinal cord tumors, their siblings, and their parents. The text was reviewed by renowned experts in pediatric oncology, and the foreword was written by Henry Friedman, MD, Deputy Director of the Brain Tumor Center at Duke, professor of neuro-oncology, and professor of pediatrics.

ABOUT THE AUTHORS:

See Nancy Keene’s bio for Childhood Leukemia, (above).

Tania Shiminski-Maher received her BSN and MS in pediatric primary care from Columbia University and holds an academic appointment to the faculty of Columbia University School of Nursing. For the past 30 years, she has worked as a pediatric nurse practitioner in pediatric neurosurgery and pediatric neuro-oncology and has published extensively in the areas of pediatric brain tumors, hydrocephalus, and multidisciplinary team communication. She has been a member of the Children’s Cancer Group (CCG) and Children’s Oncology Group (COG) for the past 25 years.

Catherine Woodman received her BA in biology and her MD from Brown University. She has been on the faculty at the University of Iowa in the departments of psychiatry and family medicine for more than 20 years. She has served as a member of COG for 10 years and is on its Patient Advocacy Committee, Ethics Steering Committee, and Central Nervous System Tumors Steering Committee. In addition, Dr. Woodman served on the National Cancer Institute’s Pediatric Central Institutional Review Board for 6 years. Her young adult son is a survivor of medulloblastoma.


By Nancy Keene, Wendy Hobbie, Kathy Ruccione

Purchase: Amazon; Barnes & Noble In bulk at reduced prices: Josh Rowe jrowe@ipgbook.com

ABOUT: Childhood Cancer Survivors

More than 460,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. Childhood Cancer Survivors charts the territory for survivors by providing helpful information about:

Medical late effects;Emotions; Follow-up care
Staying healthy; Jobs and insurance

Woven throughout the text are true stories—practical, poignant, moving, funny—from more than 100 survivors of childhood cancer.

ABOUT THE AUTHORS:

See Nancy Keene’s bio for Childhood Leukemia, (above).

Wendy Hobbie, RN, MSN, CRNP is Associate Director of the Cancer Survivorship Program at Children’s Hospital of Philadelphia (CHOP), the first comprehensive follow-up clinic in the United States. In addition to co-authoring three editions of Childhood Cancer Survivors, Wendy is one of the editors and chapter authors of the textbook for professionals, Survivors of Childhood Cancer: Assessment and Management (now in its third edition). She has published numerous articles in peer-reviewed journals on topics such as the late effects of treatment for childhood cancer, the role of the nurse practitioner in follow-up care, and risk taking and decision making by survivors of childhood cancer. For 30 years, she has empowered survivors with the knowledge to advocate for themselves in the healthcare system and society.

Kathy Ruccione, PhD, MPH, RN was Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children’s Center for Cancer and Blood Diseases at Children’s Hospital Los Angeles (CHLA) for many years. Kathy established the CHLA LIFE Program along with its annual Survivor’s Day celebrations and survivor scholarship program. Kathy is one of the editors and chapter authors of the textbook for professionals, Survivors of Childhood Cancer: Assessment and Management (now in its third edition). She has published and lectured extensively on topics such as transitions in care, survivorship needs, and the role of nurses in late effects evaluation.


By Nancy Keene

Purchase: Amazon; Barnes & Noble In bulk at reduced prices: Josh Rowe jrowe@ipgbook.com

ABOUT: Your Child in the Hospital: A Practical Guide for Parents, 3

Millions of parents take their child to the hospital each year for stitches, outpatient surgery, or longer stays for serious illnesses. Your Child in the Hospital: A Practical Guide for Parents is packed with sensible tips and home-grown wisdom that will make any visit to the hospital easier. It explains how to cope with procedures, plan for surgery, communicate with doctors and nurses, and deal with insurance companies. Woven throughout the text are dozens of practical and encouraging stories from parents who have been through the experience of having a child in the hospital. This new edition contains a packing list, hospital journal for children, and helpful resources for parents. When you are packing the stuffed animals and pajamas to take to the hospital, make sure to take this book with you!

ABOUT THE AUTHOR:

Nancy Keene is the mother of a long-term survivor of childhood cancer. A well-known writer and advocate for children with cancer, she has written many books about childhood cancer. Her work has also appeared in Reader’s Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. In her spare time, she likes to read, hike with her dogs, and kayak in the waters of the Pacific Northwest.


By Melinda Marchiano

Purchase: Amazon; Barnes & Noble

ABOUT: Grace- A Child’s Intimate Journey Through Cancer and Recovery

Melinda Marchiano first felt an eerie weakness on a family trip to Yosemite National Park and, after doctors found a rock hard lump in her chest, received the devastating diagnosis of Hodgkin lymphoma. Melinda shares the ensuing battle of her young life with eloquence, humor, and wisdom beyond her years. As she struggles through treatment and fights to continue dancing–her greatest passion– Melinda recounts the events of her illness: turbulent emotions, the never-ending support of her family, and growing faith in God through operations, chemotherapy, radiation, drug reactions, an eating disorder, and more.

Whether cancer has touched their lives or not, readers will be inspired by Melinda’s complete reliance on God to get her through the terrifying ordeal. The abandonment of self-pity and remarkable tenacity displayed by the spirited young Melinda make this survivor’s tale a truly unforgettable experience.

ABOUT THE AUTHOR:

Melinda Marchiano graduated from Pepperdine University with a Creative Writing degree and is currently Director of their dance company,Dance in Flight. Melinda regularly brings her message of hope to others as an inspirational speaker through keynote addresses, small groups, and special speaker events. She traveled over 10,000 miles, through 31 states, and visited 21 children’s hospitals to bring hope to children with cancer. Melinda hosted the powerful childhood cancer documentary, The Truth 365. Her book, Grace: A Child’s Intimate Journey Through Cancer and Recovery, received the Benjamin Franklin Best First Book Award from the Independent Book Publishers Association.


By Sue Matthews and her sister Andrea Cohane

Purchase: Amazon; Barnes & Noble

ABOUT: Paint Your Hair Blue- A Celebration of Life with Hope for Tomorrow in the Face of Pediatric Cancer

In Paint Your Hair Blue, Sue Matthews takes you through the heartwarming tale of heroic courage and devastating blows that characterized her daughter Taylor’s odyssey through the underfunded world of pediatric cancer. This book serves in equal portions as an inspiring tale of the power of love and determination, and a cautionary tale of the need for parents and all caregivers to be their own advocates. It will empower you, no matter what your circumstance, to take control of your own destiny.

Most of us will be touched by cancer in some way during our lifetimes. The reader will discover how Taylor and her family learned to balance the necessity of her continuous medical treatments with the need for her to be a kid and live as normally as possible. You will gather dozens of tips and pointers, gleaned by trial and error, about navigating the maze of pediatric oncology through the lens of a layperson and better understand how to face fears with strength, fortitude and confidence while living life to the fullest. Sue and her sister Andrea will make you a better warrior in the war on cancer with this story of survival, where love transcends all and where every moment is a celebration of life.

ABOUT THE AUTHORS:

Sue Matthews is President of the Taylor Matthews Foundation, a tay-bandz organization, which is a 501 C-3, founded by her daughter Taylor, who passed from pediatric cancer at age 16. Sue is a nationally recognized advocate for pediatric cancer. TMF is at the forefront of new initiatives in awareness and continues to fund significant efforts in medical research at leading medical centers.

Andrea Cohane is a Board Member, advocate and advisor of TMF.. Andrea holds a B.S. in Economics from Cornell University and a Juris Doctorate from Fordham University School of Law. She was a business litigator at Clifford Chance, LLP in New York City and practiced at Womble, Carlyle, Sandridge & Rice in Charlotte, North Carolina.


By Dena Sherwood

Purchase: Amazon; Barnes & Noble

ABOUT: No Retreat, No Surrender

On July 6, 2008, when author Dena Sherwood first heard the devastating words, “Your son has neuroblastoma,” she never imagined that those words would later become a blessing to so many.

Dena prayerfully fought alongside her son, for three and a half years, to give him the best chance of beating the disease. A year after diagnosis, with God’s guidance, Dena founded Arms Wide Open Childhood Cancer Foundation to fund less toxic treatments for children with cancer and to bring hope to other families fighting the battle. Her son underwent chemotherapy, radiation, four major surgeries, immunotherapy, and a phase one vaccine trial and was later declared NED (No Evidence of Disease). From living in fear to living by faith No Retreat, No Surrender chronicles how one family’s faith in the Lord has brought hope and help to so many.

ABOUT THE AUTHOR:

In July of 2008, Dena Sherwood’s 13-month-old son Billy, Jr. was diagnosed with Stage IV neuroblastoma, a very aggressive cancer of the sympathetic nervous system. From that moment Dena has been working tirelessly to help all children diagnosed with cancer and their families. In August of 2009, she and her husband Billy, Sr. founded the Arms Wide Open Childhood Cancer Foundation and began funding research and supporting families. In 2012, she co-founded The Truth 365 campaign as a way to give children with cancer a voice.

Since its inception, Arms Wide Open has funded more than 60 research grants around the country, some of which have led to life-saving trials. Dena lives in Marlboro, New Jersey with her three greatest blessings, her amazing husband and two children; Sydney and Billy, Jr. Billy, Jr. is now a two-time cancer survivor and an extreme lover of life!


By Elizabeth and Jay Scott

Purchase: Amazon; Barnes & Noble

ABOUT: Alex and the Amazing Lemonade Stand

Using rhymes and bright, whimsical pictures, Alex and the Amazing Lemonade Stand tells a sweet, true story of a little girl named Alex. Faced with a problem, she comes up with a plan—she will sell lemonade from a lemonade stand. This story shows how the small act of one person can have an impact on many people.

ABOUT THE AUTHORS:

Liz and Jay Scott are the Co-Executive Directors of Alex’s Lemonade Stand Foundation and parents to four children, Patrick, Alex, Eddie, and Joey. ALSF emerged from the front yard lemonade stand of their daughter, Alexandra “Alex” Scott (1996-2004) who was diagnosed with neuroblastoma, a childhood cancer, when she was just an infant. In 2000, 4-year-old Alex announced that she wanted to hold a lemonade stand to raise money to help find a cure for other children with cancer. In her lifetime, Alex would go on to raise over $1 million before she passed away in 2004 at the age of 8. Since that time, Liz and Jay have worked alongside thousands of supporters across the country to carry on her legacy of hope.


By Joy and Tait Cruse

Purchase: Amazon; JoyCruse.com

ABOUT: Have Courage

Meet eight-year old Connor Cruse as he battles childhood cancer. Find out how he and his family found courage, peace, strength and joy along the way. Join Team Connor and learn what you can do to help other kids, like Connor, fight for the cure to childhood cancer. Teamconnor.org

ABOUT THE AUTHORS:

Joy and Tait Cruse are the proud parents of Mackenzie, Carson, Mason, and Connor (who now resides in Heaven) and recently adopted Tyler and Emma. Throughout Connor’s four-year battle with Neuroblastoma, Joy kept a Caring Bridge journal which served as the inspiration for this book. Her corresponding blog, “Joy’s Journal” continues to be followed by thousands of people throughout the world. Joy and Tait are the founders of Team Connor, a 501 c-3 which raises money to support childhood cancer research. To learn more about Connor Cruse, Neuroblastoma, or Team Connor, please visit www.teamconnor.org


By Joy and Tait Cruse

Purchase: Amazon; JoyCruse.com

ABOUT: Hope Transformed

For five years, Joy and Tait Cruse walked closely with God while their four-year-old son, Connor, battled stage-IV cancer. Throughout this time, their primary focus was to navigate through the toughest battle of their lives without losing their hope in Christ. Hope Transformed offers a simple guide in devotional/self-help format for readers to work through their own battles, while garnering strength from God. Many authors offer hope for readers during the battle. Hope Transformed also speaks to readers who, by not having their desires realized, feel defeated and lost. In the final chapters of the book, they use their post-battle wisdom to answer the compelling question, “Where do you go when God says ‘no’?” The focus of this book is not about the loss of Connor. Connor’s life was the stimulus to finding faith and hope in their battle and their loss. At first, their hope was in Connor’s healing, but ultimately their hope was found in Christ.

ABOUT THE AUTHORS:

Joy and Tait Cruse are the proud parents of Mackenzie, Carson, Mason, and Connor (who now resides in Heaven) and recently adopted Tyler and Emma. Throughout Connor’s four-year battle with Neuroblastoma, Joy kept a Caring Bridge journal which served as the inspiration for this book. Her corresponding blog, “Joy’s Journal” continues to be followed by thousands of people throughout the world. Joy and Tait are the founders of Team Connor, a 501 c-3 which raises money to support childhood cancer research. To learn more about Connor Cruse, Neuroblastoma, or Team Connor, please visit www.teamconnor.org

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