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CC Community News Digest (May 10-24)

Assorted news from the last week: Thanks to a funding partnership among CAC2 Members, Spada Pediatric Sarcoma Foundation and Sam Day Foundation created theEwing Sarcoma Research Fund with a starting corpus of $250,000 within the Beat Childhood Cancer Research Consortium.  This fund will help drive genomic sequencing for kids battling Ewing sarcoma, using whole exome sequencing to look at both DNA and RNA to discover tumor pathways and targets with a goal of developing new clinical trials. Children who have blood cancers are less likely to survive after #BMT if their families are low-income compared to children from higher-income families, a [...] Read more

Primer on State Cancer Action Plans Training Meeting

State-level advocacy is becoming a big opportunity across the country as it gives advocates another way to get involved in addition to going to DC.  This has been more and more apparent over the last year as people haven't felt comfortable traveling as much. The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) co-hosted an online advocacy training meeting focused on State Cancer Action Plans on May 11.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies [...] Read more

CC Community News Digest (May 3-9)

Assorted news from the last week: Survivors of childhood cancers are at increased risk for prescription opioid misuse compared with their peers, a review of a claims database revealed. A panel of pediatric cancer specialists endorsed the first-ever consensus recommendations for end-of-life care for children with cancer and their families. Serious Long-Term Adverse Events Decreased in Pediatric Hodgkin Lymphoma Auburn men’s basketball coach Bruce Pearl and Florida football coach Dan Mullen were among the personalities on hand Friday night in Sarasota, Florida to help ESPN college basketball analyst Dick Vitale raise $5 million at a gala to support pediatric cancer […]

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CC Community News Digest (April 26-May 2)

Assorted news from the last week: Thanks to a funding partnership among CAC2 Members, Spada Pediatric Sarcoma Foundation and Sam Day Foundation created the Ewing Sarcoma Research Fund with a starting corpus of $250,000 within the Beat Childhood Cancer Research Consortium. Cicadas and Chemo-Induced Hearing Loss Pediatric Cancer Research Foundation joins Oncoheroes Biosciences on their unique approach to defeat childhood cancer. For children with acute lymphoblastic leukemia (ALL), the type/dose of steroid seems not to be related to adverse psychological reactions (APRs) but may be associated with sleep problems, according to a review published in Psycho-Oncology. AstraZeneca and MSD’s selumetinib has [...] Read more

Primer on State Cancer Action Plans Training Meeting

The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) are pleased to invite you to a jointly convened online advocacy training meeting focused on State Cancer Action Plans.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies to help inform and guide communities in the fight against cancer. Primer on State Cancer Action Plans Click above to register (Zoom details to follow) Tuesday, May 11, 2021 7:00-8:30 pm ET 6:00 CT, 5:00 MT, 4:00PT Currently, only 21 [...] Read more

CC Community News Digest (April 12-25)

Assorted news from the last week: A recent student from the Childhood Cancer Survivorship Study that indicates that sixty‐four percent of survivors reported worrying about subsequent malignancy, that 45% reported worrying about physical problems related to cancer, and that 33% reported worrying about relapse. This Journal of Clinical Oncology article addresses neurocognitive late effects in pediatric cancer survivors and explores five broad intervention domains:  compensatory methods, pharmacologic interventions, in-person cognitive remediation, computerized approaches, and physical activity interventions. Treatment with an oncolytic immunovirotherapy alone or with radiation appeared safe and effective in a phase I study of children and adolescents with [...] Read more

CC Community News Digest (March 29-April 11)

Assorted news from the last week: From the American Cancer Society:  Prevalence and predictors of cancer‐related worry and associations with health behaviors in adult survivors of childhood cancer From Children’s Cause:  Rachel McCallum is a long-term survivor diagnosed with Anaplastic Astrocytoma of the 4th ventricle of the brain stem in 1993.  Her experience as a long-term survivor has encouraged her to become an advocate for others like herself who have struggled with the transition from pediatric patient to independent adulthood. Research from St. Jude suggests that the socioeconomics of families is a significant predictor of whether childhood brain tumor survivors […]

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CAC2 Webinar–Childhood Cancer Advocacy: Action Day 2021

In April's Special Edition CAC2 All-Member Webinar CAC2 Member Danielle Leach (National Brain Tumor Society and the Alliance for Childhood Cancer) highlighted the opportunity for online issues and advocacy training and pre-arranged Zoom meetings with Members of Congress and their staffs.  Action Day 2021 promises to be very exciting. Thanks to a fully virtual setting, more advocates than ever can participate in effective, meaningful interactions with members of Congress and their staff.  Please register to participate in Action Day activities and advocate virtually for the pediatric cancer community. Action Day Registration Training, April 20, 1:00-3:00 ET Action Day Virtual Hil [...] Read more

Guest Blog–How Collaboration is Advancing Research and Clinical Care in Pediatric Cancer

By Guest Blogger Dr. Lynne Davies, Operations Manager, International Cancer Research Program   It is with great excitement that I write to let you know about the upcoming webinar scheduled for Monday, April 19th at 10am ET, which aims to capture the very essence of why the International Cancer Research Partnership (ICRP) was created.   ICRP is a unique alliance of cancer organizations working together to enhance global collaboration and strategic coordination of research.  This webinar, entitled “How collaboration is advancing research and clinical care in pediatric cancer,” is jointly organized by ICRP, National Cancer Research Institute Children’s Group and Events […]

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CC Community News Digest (March 22-28)

Assorted news from the last week: CNN reporter and recently bereaved dad writes:  the Gabriella Miller Kids First Research Act 2.0 would take money from pharmaceutical companies that behave badly and use it to pay for desperately needed pediatric disease research. The U.S Food and Drug Administration (FDA) has granted Orphan Drug and Rare Pediatric Disease (RPD) Designations for a radiopharmaceutical for Positron Emission Tomography (PET) imaging, the clinical management of pediatric patients with Diffuse Intrinsic Pontine Glioma (DIPG). End-of-Life Care:  A Conversation Recent research tested the efficacy and feasibility of bright light therapy on adolescent cancer survivors. Oncology Nursing [...] Read more

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