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CC Community News Digest (week of September 7-13)

Assorted news from the last week: Camp Okizu at Berry Creek, a camp for pediatric cancer patients and their families, sustained significant damage in California's Bear Fire. Early results of a clinical trial show that for children and adults with advanced soft tissue sarcoma, adding the targeted drug pazopanib (Votrient) to chemotherapy and radiation treatment is safe and increases the chances that most of the tumor will be dead before surgery. Study in Pediatric Blood Cancer concludes that physicians can foster trust through patient-centered communication and provision of high-quality information about a child’s cancer. Baltimore Ravens honor pediatric cancer patients. [...] Read more

September 9 Virtual Day of Action: How to Get Involved

By Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation Today is the day! The childhood cancer community is joining together today to use our collective voice to build support for funding for the Childhood Cancer STAR Act, the most comprehensive childhood cancer bill ever. Advocates across the childhood cancer community are writing to their members of Congress, posting on social media, and spreading the word to their networks about today’s Virtual Day of Action. If your organization would like to participate, please use these materials so we [...] Read more

CC Community News Digest (week of August 31-September 6)

Assorted news from the last week: National Cancer Institute released its Annual Plan and Budget Proposal for Fiscal Year 2022.  This plan focuses on our enduring top priority — accelerating cancer research — and features four special scientific topics: cancer drug resistance, molecular diagnostics for cancer treatment, obesity and cancer, and cancer survivorship. Major League Soccer and Continental Tire teamed to raise awareness and funds for childhood cancer with the 7th year of the Kick Childhood Cancer campaign. Major League Baseball devoted Saturday, September 5 to childhood cancer activities around the league.  Players wore gold ribbon decals and wristbands, and teams [...] Read more

Pediatric Oncology: Summary of Guidances and Meetings

Guidances Acute Myeloid Leukemia: Developing Drugs and Biological Products for Treatment Pediatric Study Plans: Content of and Process for Submitting Initial Pediatric Study Plans and Amended Initial Study Plans Cancer Clinical Trial Eligibility Criteria: Minimum Age Considerations for Inclusion of Pediatric Patients    Meetings 15 Sep: Pediatric Advisory Committee Will discuss pediatric-focused safety reviews for medications related to acute dystonia associated with  ADHD, acute hyperkinetic movement disorder associated with combined use of ADHD stimulants and  antipsychotics 22-23 Oct: Pediatric Dose Selection Public Workshop ($50) Will discuss current methods and future approaches, and how to address gaps in pediatric dose selection  that […]

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CC Community News Digest (week of August 24-30)

Assorted news from the last week: Cancer and its treatment may accelerate the aging process in young patients Research has identified a small molecule compound that may make some medulloblastoma patients respond better to treatment Childhood Cancer virtual Action Day planned for September 9 Chadwick Boseman, who died of cancer Friday at age 43, inspired many in roles as King T'Challa, Jackie Robinson and James Brown, but also used his prominence to lift up children with cancer. CAC2 salutes Members Solving Kids’ Cancer, Momcology, Ty Louis Campbell Foundation, and the Max Cure Foundation who worked collaboratively with Friends of Karen [...] Read more

Virtual Day of Action: Join Together on September 9

By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation For nearly 10 years, childhood cancer advocates from around the country have come to Washington, D.C. to participate in the Childhood Cancer Action Days.  Action Days brings our community together to advocate for important childhood cancer issues currently before Congress.  As a result of our advocacy, we have seen many important childhood cancer policies, like the Childhood Cancer STAR Act, become law.  Due to the COVID-19 pandemic, our plans for Action Days had to change this [...] Read more

CC Community News Digest (week of August 17-23)

Assorted news from the last week: CAC2 urges members to support efforts to help children’s hospitals in Beirut in the aftermath of the deadly August 4 explosion.  You can read more about the explosions effect on pediatric cancer patients from the New York Times American Association for Cancer Research will hold virtual Rally for Medical Research Event on September 17 Researchers to study chemo brain in children with ALL Childhood cancer survivors with severe hearing loss:  significantly increased risk for neurocognitive deficits  independent of what type of therapy they receive THON dance marathon goes virtual RACE for Children Act implemented this week

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Rally for Medical Research, 2020

Rally for Medical Research, 2020, an annual AACR advocacy event, will take place as a completely virtual event! Schedule of Events Thursday, September 10 1:00 pm – 2:00 pm EDT Virtual Training for all Rally Hill Day Participants Wednesday, September 16 5:30 pm – 6:30 pm EDT Virtual Reception to Celebrate Medical Research Thursday, September 17 9:30 am – 5:30 pm EDT Rally for Medical Research Virtual Hill Day Meetings with House and Senate offices will take place via phone/video conference. Participants in times zones other than EDT will have their meetings begin at 9:30 am in their local time [...] Read more

CC Community News Digest (week of August 10-16)

Assorted news links from the last week: INCB, WHO and UNODC Statement on Access to Internationally Controlled Medicines during COVID-19 Pandemic FDA Issues Complete Response Letter for Pedmark  An important step forward for mitigating the risk of life-long hearing loss caused by cisplatin AML Survivors at risk for psychosocial impairment Another study from the Childhood Cancer Survivor Study Beirut blast disrupts cancer care for children NPR reports on the wide range of damage from the explosion in Beirut More news about DIPG:  Discoveries point to a new potential treatment approach For childhood cancer survivors, exercise intolerance predicts a range of other health [...] Read more

CC Community News Digest (week of August 3-9)

Assorted news links from the last week: Study Offers Insights on Health Problems among AYA Cancer Survivors Medical trial aims to identify those at risk of heart damage following cancer treatment Australian researchers taking a very broad look at the effect of cancer treatment on heart health. Racial Disparities in Pediatric Cancer Treatment: Black Children Less Likely to Receive Proton Radiotherapy, Forbes US FDA Grants Rare Pediatric Disease Designation (RPDD) to Paxalisib for DIPG, a big win for the Creating Hope Act (which needs to be permanently reauthorized by the end of September) Risk-Stratified Therapy Reduces Late Morbidity, Mortality in Pediatric [...] Read more