SURVIVORSHIP

When a child is diagnosed, the primary goal is to get them to survive their cancer.

The number of childhood cancer survivors has increased as treatment options have advanced.  However, survivors often bear the burden of their treatments and may not live better, higher quality lives due to the life-long effects of childhood cancer.

They may contend with a range of late effects, some arising from their cancer and some a result of the brutal, toxic treatments that saved their lives.  These capricious late effects can develop within months after treatment ends or decades later, well into adulthood.

According to the CAC2 Childhood Cancer Fact Library:

  • More than 95% of childhood cancer survivors will have a significant health-related issue by the age of 45.
  • ⅓ of survivors will suffer severe or chronic late effects, ⅓ of survivors will suffer moderate to severe late effects, and ⅓ will suffer slight to moderate late effects.
  • Cognitive impairment affects up to ⅓ of childhood cancer survivors.
  • 10% of childhood cancer survivors experience a secondary cancer within 30 years of their initial diagnosis.

 

As a result, survivors face physical and psychosocial challenges that lead to educational, financial, legal, employment, medical care, and health insurance challenges throughout their lives.  Furthermore, childhood cancer survivors and their families often feel isolated, alone, forgotten, and frustrated by a lack of support.

The Survivorship Interest Group was founded and charged to address these myriad of challenges that childhood cancer survivors (ages 0-19), their caregivers, and their families face.  We do this through our various projects and initiatives.  We hope to ease the burden for survivors and their caregivers and families by providing simple access to the information and assistance they need.  We also hope that nonprofit organizations, medical professionals, and other CAC2 members will use our projects to incorporate survivorship into their organizations and institutions which will further help childhood cancer survivors and their families.

If you have any questions or would like to become involved with the Survivorship Interest Group, please contact: .

Survivors of childhood cancer face unique challenges.

Survivorship Matters Blog
Current Survivorship Initiatives

Latest From the CAC2 Blog

Survivorship Matters Blog By CAC2 Member Mary Beth Collins, PREP4Gold SCANXIETY –  just the word generates response in the childhood ...
Read More
By Guest Blogger CAC2 Member Mary Beth Collins, PREP4Gold For the entire month of September the world hears a great ...
Read More
Assorted news from the last week: From the American Cancer Society:  Prevalence and predictors of cancer‐related worry and associations with ...
Read More
Assorted news from the last two weeks: NCI unveiled two new resources for young people with cancer: tips to help ...
Read More
By Guest Blogger CAC2 Member Carolyn Breinich In 2019, I attended my first CAC2 Summit in Columbus, Ohio.  It was ...
Read More
Assorted news from the last week: CAC2 Member Joe Baber urges community members to take immediate action to secure Senate ...
Read More