CC Community News Digest (May 10-24)

Assorted news from the last week: Thanks to a funding partnership among CAC2 Members, Spada Pediatric Sarcoma Foundation and Sam Day Foundation created theEwing Sarcoma Research Fund with a starting corpus of $250,000 within the Beat Childhood Cancer Research Consortium.  This fund will help drive genomic sequencing for kids battling Ewing sarcoma, using whole exome sequencing to look at both DNA and RNA to discover tumor pathways and targets with a goal of developing new clinical trials. Children who have blood cancers are less likely to survive after #BMT if their families are low-income compared to children from higher-income families, a [...] Read more

CAC2 Member Blog–Joint-Funding Initiative for Ewing Sarcoma

By CAC2 Member Sarah Bartosz, Beat Childhood Cancer This collaborative research effort was due in part to childhood cancer groups coming together as part of CAC2. Nearly one year ago, Gold In September (G9) joined forces with Beat Nb to become Beat Childhood Cancer, a single organization building research infrastructure, funding precision medicine, and growing the conversation to champion gold awareness. With belief in parent impact as a driving force, the expanded Beat Childhood Cancer organization has forged a new collaboration with other CAC2 members. In an effort to find novel ways to support precision medicine efforts, The Spada Pediatric [...] Read more

Primer on State Cancer Action Plans Training Meeting

State-level advocacy is becoming a big opportunity across the country as it gives advocates another way to get involved in addition to going to DC.  This has been more and more apparent over the last year as people haven't felt comfortable traveling as much. The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) co-hosted an online advocacy training meeting focused on State Cancer Action Plans on May 11.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies [...] Read more

CAC2 Webinar–Improving Time to Diagnosis for Pediatric and Young Adult Cancer Patients

We were pleased to  present the May All-Member Webinar on May 12.  Sue Guisto (Friends of Cathryn Foundation) and Steve Crowley helped us host a speaker program that included Drs. David Walker and Scott Coven speaking on  Improving Time to Diagnosis for Pediatric and Young Adult Cancer Patients The presentation addressed the reasons why and solutions for detecting symptoms of cancer in children earlier in the diagnosis timeline.  Speakers founded the UK’s Head Smart Program which has effectively addressed delayed diagnosis in children’s brain tumors.     Many parents of children who have or are battling cancer have experienced the frustration [...] Read more

CC Community News Digest (May 3-9)

Assorted news from the last week: Survivors of childhood cancers are at increased risk for prescription opioid misuse compared with their peers, a review of a claims database revealed. A panel of pediatric cancer specialists endorsed the first-ever consensus recommendations for end-of-life care for children with cancer and their families. Serious Long-Term Adverse Events Decreased in Pediatric Hodgkin Lymphoma Auburn men’s basketball coach Bruce Pearl and Florida football coach Dan Mullen were among the personalities on hand Friday night in Sarasota, Florida to help ESPN college basketball analyst Dick Vitale raise $5 million at a gala to support pediatric cancer […]

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CC Community News Digest (April 26-May 2)

Assorted news from the last week: Thanks to a funding partnership among CAC2 Members, Spada Pediatric Sarcoma Foundation and Sam Day Foundation created the Ewing Sarcoma Research Fund with a starting corpus of $250,000 within the Beat Childhood Cancer Research Consortium. Cicadas and Chemo-Induced Hearing Loss Pediatric Cancer Research Foundation joins Oncoheroes Biosciences on their unique approach to defeat childhood cancer. For children with acute lymphoblastic leukemia (ALL), the type/dose of steroid seems not to be related to adverse psychological reactions (APRs) but may be associated with sleep problems, according to a review published in Psycho-Oncology. AstraZeneca and MSD’s selumetinib has [...] Read more

CAC2 Webinar–Liquid Biopsy for Early Cancer Detection in Patients with Cancer Predisposition Syndromes

In April's CAC2 All-Member Webinar, Dr. Brian D. Crompton (pediatric oncologist at Dana Farber/Boston Children's Hospital) and CAC2 Member Greg Harper (Living LFS) presented about the possibilities with emerging technology identifying circulating cancer cells with liquid biopsies, using Li-Fraumeni Syndrome as a case study. The presentation below described the investigation into a liquid biopsy for Li-Fraumeni Syndrome patients and the EDISYN consortium and how nonprofits partnering with medical research centers to help empower patients and families. Read more

Primer on State Cancer Action Plans Training Meeting

The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) are pleased to invite you to a jointly convened online advocacy training meeting focused on State Cancer Action Plans.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies to help inform and guide communities in the fight against cancer. Primer on State Cancer Action Plans Click above to register (Zoom details to follow) Tuesday, May 11, 2021 7:00-8:30 pm ET 6:00 CT, 5:00 MT, 4:00PT Currently, only 21 [...] Read more

CC Community News Digest (April 12-25)

Assorted news from the last week: A recent student from the Childhood Cancer Survivorship Study that indicates that sixty‐four percent of survivors reported worrying about subsequent malignancy, that 45% reported worrying about physical problems related to cancer, and that 33% reported worrying about relapse. This Journal of Clinical Oncology article addresses neurocognitive late effects in pediatric cancer survivors and explores five broad intervention domains:  compensatory methods, pharmacologic interventions, in-person cognitive remediation, computerized approaches, and physical activity interventions. Treatment with an oncolytic immunovirotherapy alone or with radiation appeared safe and effective in a phase I study of children and adolescents with [...] Read more

CAC2 News–Registration Open: CAC2 2021 Annual Summit

Registration is now open for CAC2’s 2021 Annual Summit, taking place virtually Thursday, June 24th and Friday, June 25th.  This year we will meet two consecutive afternoons on Zoom.  The CAC2 Meetings Team has designed a robust program that will balance expert content presentations with opportunities for active engagement for attendees. We will kick off the first day at noon ET with a session welcoming New Members and giving them the chance to “meet & greet” each other and learn how to engage the many resources and opportunities available to CAC2 members.  The afternoon will also include the members-only Business […]

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