NCI Advocacy Update

July 8, 2024 Blog Posts, Community News

The NCI Council of Research Advocates met virtually on June 26 and heard the latest legislative report, with updates on appropriations, cancer-related legislation, and other ways that NCI is engaging and advocating.  The full deck is below, leading with the latest on the budget progress. Slide 14 highlights Congressional Staff meeting with NCI Director Dr. Kimryn Rathmell and NCI pediatric oncology experts (May 29, 2024).  

 

 

The presentation also highlighted several pieces of legislation of interest to our community:

  • Pediatric Cancer Drug Supply Act of 2024 (H.R. 6963), which directs HHS to establish a program to create a reserve supply of essential pediatric cancer drugs by contracting with drug manufacturers.
  • Creating Hope Reauthorization Act of 2024 (H.R. 7384)
  • Give Kids a Chance Act (H.R. 3433).
  • Gabriella Miller Kids First Research Act 2.0 (H.R. 3391), which would reauthorize this NIH research program that is set to expire in 2024.
  • National Brain Tumor Awareness Month (H.Res. 1264)
  • DIPG Pediatric Brain Cancer Awareness Day (S.Res. 691)
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