CAC2 Childhood Cancer Community News Digest (February 3-9)

February 10, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

CAC2 Member Annette Logan-Parker (Cure 4 the Kids Foundation) explains why she joined the CAC2 Innovation Council.

A research paper by Dr. Anahita Fathi Kazerooni, Dr. Adam Kraya, and other colleagues, published in the prestigious Nature Communications Journal, sheds new light on the complexities of pediatric low-grade gliomas.

People with cancer are living longer than everopens in a new tab or window, but many of them have to deal with long-lasting effects of the disease and treatment.

Pediatric tumors are often driven by one or two spontaneous mutations, whereas adult tumors can have hundreds of driver mutations. These differences can have significant implications for treatment in pediatric cancers, because fewer mutations mean that targeted treatments can have greater efficacy.

Research discovery halts childhood brain tumor before it forms.

Potential new therapy for childhood brain cancer could heal treatment-resistant tumors.

Upcoming Webinars, Online Opportunities, and Meetings:

The 2nd Childhood Cancer Prevention Symposium will be held in Houston, TX, at Texas Children’s Hospital, February 10-13, 2025. Click here for more information and to register.

Community webinar exploring children’s and young people’s cancers will explore how clinical research and how clinical trials to deepen our understanding of cancer biology and treatment for children’s and young people’s cancers, February 12, 10:00 ET.  Click here for more information and to register.

Join Gray for Glioblastoma and After Hours for Valentine’s evening at La Maison Française of the French Embassy to support brain cancer research on February 14, from 7:00-11:00 ET.  Click here for more information and to register.

Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

Patients as Partners in Clinical Trials will host a panel of clinical site representatives talk about the essential support required to enhance sites’ ability to provide quality care to patients and reduce the burdens of participation for both coordinators and patients, February 18, 11:00 am ET.  Click here for more information and to register.

Pediatric Brain Tumor Foundation will host a webinar with PBTF Family Support Manager Jenn Kelley and Nationwide Children’s Hospital Psychologist Dr. Danielle Chambers as they share insights and personal stories to help families navigate the fear and uncertainty that comes with the numerous medical scans children face during their pediatric brain tumor journey, February 25, 1:00 pm ET.  Click here for more information and to register.

Recent Recordings:

Day One’s recent Advocacy Community Meeting on “Fit-for-Filing Academic Clinical Trials: Considerations for Advocates and for Pharma.”

Take Action:

Last year, Congress left kids with cancer behind. Today, 64 CAC2 member organizations joined over a dozen other organizations urging the new Congress to make them the first order of business. As the new legislative year begins we are closely monitoring developments on Capital Hill and within key federal agencies. We continue to believe children with cancer have waited long enough, and that it’s time to finish the job. Please share our CAC2 Letter to Congressional Leadership with #CancelChildhoodCancer and#KidsDeserveBetter on social media to show your support.

Researchers from Michigan strongly urge you to reach out to your US House Representatives and US Senators regarding the attack on the NIH and US academic research institutions.  The specific new policy of reducing NIH grant indirect funds to 15% is economically disastrous for the country.  It is super important to advocate to your elected officials to oppose this policy, and to work to reverse it.

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