CAC2 Childhood Cancer Community News Digest (June 27-July 3)

Assorted News from Last Week:

Childhood cancer survivors of certain racial and ethnic groups were prone to more hospitalizations for various conditions years down the road.

Survivorship Matters Blog:  Recapturing the Dream

NCI’s new Molecular Characterization Initiative (MCI) is expanding comprehensive molecular characterization of tumors to children, adolescents, and young adults (AYAs) with newly diagnosed soft tissue sarcomas receiving care at hospitals affiliated with the Children’s Oncology Group.

Intratumoral infusion of an oncolytic virus offered safe and feasible results, along with encouraging efficacy, in pediatric patients with diffuse intrinsic pontine glioma (DIPG).

Some children with a type of brain cancer called low-grade glioma may have a new standard treatment, according to the results of a new clinical trial.  In the study, the combination of dabrafenib (Taflinar) and trametinib (Mekinist) was safer and better than standard chemotherapy at shrinking tumors and keeping them at bay.

Upcoming Webinars, Online Opportunities, and Meetings:

Join advocates from around the country for the 2022 Rally for Medical Research! The Hill Day will take place on Wednesday, September 14, with advocates meeting their congressional representatives and staff. The evening before, on September 13, there will be a  reception to celebrate medical research with all partners and participants.

Children’s Cancer Cause is hosting a virtual externally-led Patient-Focused Drug Development (PFDD) meeting on Reducing Cardiac Late Effects in Pediatric Cancer Survivors, on September 15, 2022. The conference is an opportunity for survivors and caregivers to educate representatives of the FDA, academic researchers, and pharmaceutical companies about their personal experiences managing the impact of cardiac late effects on daily living and long-term health.  Registration link.

Save the Date:  Key experts from across the pediatric cancer ecosystem will address the promise and challenges of artificial intelligence implementation in drug development, diagnosis and clinical trial design in the CureSearch Summit Prelude: The Challenges and Promise of Artificial Intelligence in Drug Development on September 15, 2022  3:30PM –5PM (EST).

Recordings of Recent Past Events:

Empowering Patients and Families Through Decision‐Making at Timepoints of Care for Neuroblastoma,” an exploration of how biological factors, age, and stage of tumor determine treatment. Find out how anti-GD2 antibodies significantly improved survival.  Brought to you by CAC2 Members Solving Kids’ Cancer and Y-mAbs Therapeutics, Inc.

Take Action:

Children’s Cancer Cause has established an annual award, the Survivorship Champion’s Prize, to be presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.  These awards recognize the importance of the unique challenges associated with the post-treatment services for survivors, especially as they transition to non-oncology adolescent and/or adult health care services.  This year, there are awards in two categories (click here for more information and to apply):

  • Champion’s Prize Award: $10,000
  • Recognition Awards for 1) Program Impact; 2) Collaboration; and 3) Scalability: $5,000 each

During June, on Childhood Cancer International social media wants to share stories, testimonials and activities regarding childhood cancer survivorship. If you have content that would like to share with us please send it to .

For the second year, CureFest will feature a powerful memorial on the National Mall to pay tribute to children who have passed away from cancer.
On Sunday, September 25, organizers will display 1,800 pairs of empty shoes at the base of the Washington Monument across from the National Sylvan Theater. This represents the number of children in the US who pass away from cancer each year.  If you are a bereaved parent and would like to ship a pair of shoes to represent your child, please ship the shoes to the following address by September 12:
CureFest Shoe Memorial
c/o Mike Gillette
10311 Beaumont St.
Fairfax, VA 22030