CAC2 Childhood Cancer Community News Digest (May 13-19)

Assorted News from the Last Week:

St. Jude survivorship portal and its ability to facilitate breakthroughs in pediatric cancer survivorship research were published recently in Cancer Discovery. The portal integrates data involving whole genomic sequencing, treatment exposure and outcomes — creating an unprecedented research system that houses 400 million genetic variants from over 7,700 childhood cancer survivors.

In an effort to raise awareness about pediatric brain cancer, encourage research on diffuse intrinsic pontine glioma (DIPG) tumors and other pediatric cancers, and honor patients and families who have faced this disease, the U.S. Senate passed a bipartisan resolution (S.Res. 691) designating May 17 as DIPG Pediatric Brian Cancer Awareness Day.

Researchers from the University of Sheffield have created a stem cell model designed to investigate the origins of neuroblastoma. The international research team found that specific mutations in chromosomes 17 and 1, combined with overactivation of the MYCN gene, play a pivotal role in the development of aggressive neuroblastoma tumours.

A new study examines the medical impact of opportunistic genomic screening (OGS) in a cohort of patients undergoing comprehensive genomic germline DNA testing for childhood cancer, including the impact on their relatives.

Providing culturally sensitive palliative care to children with cancer

Upcoming Webinars, Online Opportunities, and Meetings:

The countdown to the “Big Data Dialogue, The Next Catalyst for Cures” has begun. Join Kids First on May 29 at 11 a.m. EDT for a deep dive into pediatric research advancement through big data. For information and to register.

Join Rebecca Katz, culinary innovator, and Natalie Crittendon, Occupational Therapist, for a discussion on all things nutrition as relates to illness on May 31, from 1:00-2:00 ET.  For information and to register.

Register for the Making It Better at the 7th Annual FACTOR Conference in June 20-22, 2024—an intimate gathering shaping the future of osteosarcoma care. Connect with more than 60 dedicated doctors and researchers, resilient patients and families, and insightful scientific panels in thoughtful discussions, shared experiences, with a touch of fun.  For information and to register.

The 21st International Symposium on Pediatric Neuro-Oncology (ISPNO 2024) from June 29 – July 2, 2024, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) from June 28-29, 2024, which will take place in Philadelphia, PA.  For information and to register.

56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Take Action:

The Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.

The Facebook group ArtVsCancer has hundreds of artists, who create free custom art for children with a life-threatening illness. We have helped many individual patients and are collaborating with Kristen King, the Manager of Child Life at Memorial Health Dwaine & Cynthia Willett Children’s Hospital of Savannah.  For information and to learn more check out the link to some of the children and their custom art

CAC2 Member Cancer Help Desk provides expert cancer navigation to anyone from anywhere.

Announcing a new Childhood Cancer Data Initiative (CCDI)–related Request for Proposals (RFP). The RFP invites proposals from organizations able to perform molecular profiling using specimens from children, adolescents, and young adults with cancer. Submissions will be accepted until 3:00 p.m. ET on June 14, 2024.


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