Currently browsing: Member Blogs

Delayed Diagnosis for Children with Cancer

By Guest Bloggers CAC2 Member Susan Guisto (Friends of Cathryn Foundation) and Judith G. Villablance, MD, Children's Hospital Los Angeles Every year, approximately 1 in 10,500 children from birth to 15 years of age are diagnosed with cancer in the United States. Most pediatricians will likely encounter only one to [...]

CAC2 Members Launch Joint-Funding Initiative for Ewing Sarcoma

May 17, 2021 CAC2 Collaborative Achievements, Member Blogs No comments yet

By Guest Blogger CAC2 Member Sarah Bartosz Nearly one year ago, Gold In September (G9) joined forces with Beat Nb to become Beat Childhood Cancer, a single organization building research infrastructure, funding precision medicine, and growing the conversation to champion gold awareness. With belief in parent impact as a [...]

Presenting Mandy Spielvogle Powell, CAC2 Managing Director

April 6, 2021 CAC2 CAC2 News, Member Blogs No comments yet

By Guest Blogger CAC2 President Vickie Buenger At our January 2020 board retreat in Philadelphia, the CAC2 Board of Directors began what will ultimately be an 18-month leadership transition, carefully designed to ensure long-term sustainability of the organization. In March 2020, we presented our draft succession roadmap to all of […]

Surveying Parents to Inform Physicians

January 31, 2021 CAC2 Member Blogs No comments yet

By Guest Blogger CAC2 Member Patti Gustafson For years we looked to medical professionals to tell us what we needed to know to treat our son’s medulloblastoma. We trusted them and we followed their advice. Since 2013, we have been working with families who have lost their child to cancer [...]

Better Together

December 1, 2020 CAC2 Member Blogs 1 comment

By Guest Blogger CAC2 Member Carolyn Breinich In 2019, I attended my first CAC2 Summit in Columbus, Ohio. It was there where Mariah, a 40-year survivor, and I, a 26-year survivor, met, connected, and formed a special friendship. We quickly realized that even though we did not have the same [...]

Don’t let HOPE die in the US Senate!

November 16, 2020 CAC2 Community News, Member Blogs No comments yet

By Guest Blogger CAC2 Member Joe Baber If the Creating Hope Act (S. 4010) does not pass the Senate by December 11, THIS YEAR we will lose the best tool we have ever had to inspire drug developers to produce Childhood Cancer and Rare Pediatric Disease drugs. This bill has produced 26 drugs in the last eight years, [...]

An Estimate of the Long-Term Outcomes for Children with Cancer

September 18, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger CAC2 Member Bob Piniewski (People Against Childhood Cancer) Childhood cancer statistics, like all statistics (1), can be confusing. Any statistic can be used to hide or distort the truth, and even the statistics we trust may only tell part of the story. This essay analyzes some familiar [...]

Lessons Learned from a Childhood Cancer Survivor

August 8, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger, CAC2 Member Mariah Forster Olson (Neuroblastoma Children's Cancer Society) As a long-term childhood cancer survivor with numerous late effects, I have had 39 years of experience in the medical field…as a patient. As many of us know, life consists of doctor appointments, blood work, diagnostic tests, procedures, [...]

Joining Forces to Bring New Therapies to Children with Cancer

July 26, 2020 CAC2 Collaborative Achievements, Member Blogs No comments yet

By Guest Blogger, CAC2 Member Cesare Spadoni (aPODD). “Pharma and biotech companies do not develop drugs for kids with cancer!” How many times have we heard these words within the childhood cancer community? Over the past several decades we have witnessed unprecedented progress in oncology, with an array of [...]

New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

July 11, 2020 CAC2 Member Blogs No comments yet

By Guest Blogger, CAC2 Member Jonathan Agin (Max Cure Foundation) I frequently speak of viewing childhood cancer like a bicycle wheel with multiple spokes emanating from the hub in the center. Each spoke represents a problem or area of focus: drug development, psychosocial care, early detection, survivorship, research funding, access to treatment, [...]

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Currently browsing: Member Blogs

Delayed Diagnosis for Children with Cancer

CAC2 Members Launch Joint-Funding Initiative for Ewing Sarcoma

Presenting Mandy Spielvogle Powell, CAC2 Managing Director

Surveying Parents to Inform Physicians

Better Together

Don’t let HOPE die in the US Senate!

An Estimate of the Long-Term Outcomes for Children with Cancer

Lessons Learned from a Childhood Cancer Survivor

Joining Forces to Bring New Therapies to Children with Cancer

New Report to be Released: Cross-Sector Strategies for Childhood Cancer Prevention

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