CC Community News Digest (February 22-28)

March 1, 2021 Community News, News Digest

Assorted news from the last week:

The National Comprehensive Cancer Network (NCCN) has issued guidelines for the management of children with Wilms Tumor, or nephroblastoma.

Can children get breast cancer?

The Global COVID-19 Observatory and Resource Center for Childhood Cancer was developed, launched, and maintained by the International Society of Pediatric Oncology and St. Jude Children’s Research Hospital. The three components (Resource Library, Global Registry, and Collaboration Space) complement each other, establishing a mechanism to generate and transfer knowledge rapidly throughout the community.

Upcoming Webinars and Online Opportunities:

ASK Foundation is hosting a FREE virtual conference on March 5th for teachers, nurses, and school administrators to learn how they can better support pediatric cancer patients and survivors in the classroom. It will remain online and available to registered participants through June 1st. Feel free to share with anyone you think might be interested. CEUs and CNEs will be awarded for Virginia educators. https://www.askccf.org/educator-conference.html

The Small Business Concept Award (SBCA) has issued a new SBIR contract solicitation to fund high-risk, high-innovative projects in rare and pediatric cancers.  Also here is the youtube link for the promotional video: https://youtu.be/2FKkEiJF8fk.  Salient features of this solicitation are  :

  • Target high-risk/high reward projects in areas of pediatric and/or rare cancers
  • Seeking to derisk highly innovative concepts – out of the box ideas are encouraged.
  • Preliminary data is not required  or expected to be competitive for funding.
  • Shorter application with review criteria heavily weighted towards innovation.
  • Submission of a white paper in March with a 2-3 page project summary for program feedback pre-application.
  • 300K , Phase I contract funding for proof of concept.
  • Additional funds for I-Corps program for entrepreneurial training.
This new NCI funding opportunity to promote disruptive innovation during a special webinar on Thursday, March 4, 2021 2:00 pm ET. Speakers Deepa Narayanan (NCI SBIR Program Director), Tiffany Chadwick (Office of Acquisitions), Shakeel Ahmad (Scientific Review Officer at NCI) will share important information on this new funding opportunity. Please click here to register.
Rare Disease Day is a time to reflect on both the progress that has been made, and the work that needs to be done, to advance rare disease treatments. The COVID-19 pandemic has added urgency, because people with rare diseases are among the most vulnerable to COVID-19. The U.S. Food and Drug Administration is committed to supporting development of  treatments for rare diseases. To recognize Rare Disease Day and engage with the rare disease community, the FDA is holding a virtual public meeting on March 5, 2021. This meeting will bring together stakeholders to highlight strategies that can promote rare disease product development.
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