CC Community News Digest (week of September 14-20)
Assorted news from the last week:
A study by a French research team found “that treatment with growth hormones is not associated with an increased risk of second tumors” for children who survived cancer and later received treatment for growth hormone deficiency.
Brigitte Widemann, chief of the Pediatric Oncology Branch for the Center for Cancer Research at the National Cancer Institute, started conducting clinical trials for neurofibromatosis type 1 (NF1) in 2001, and results from the most recent trial holds promise to shrink the tumors or stop their growth.
FDA grants rare pediatric disease designation to a second CAR (chimeric antigen receptor) T-cell therapy programmed to destroy cells with a surface marker called CD22. This treatment is intended for children and young adults whose ALL has relapsed after or is resistant to immunotherapy directed toward another surface molecule, CD19.
New release this week in NCI’s Childhood Cancer Video Series: “When a Child Has Cancer.” Check out the entire series of short videos featuring parents and pediatric oncology experts sharing strategies to help parents cope with a diagnosis of childhood cancer, make treatment-related decisions, support their child and family, and manage cancer information.
In conjunction with Childhood Cancer Awareness Month, Healio (a specialty clinical information website) rounds up eight key updates in pediatric oncology research and treatment.
SpringWorks Therapeutics Announces Collaboration with Children’s Oncology Group to Conduct a Phase 2 Clinical Trial of Nirogacestat in Pediatric Patients with Desmoid Tumors.
FDA granted Rare Pediatric Disease Designation to Ad-RTS-hIL-12 with veledimex (Controlled IL-12) for the investigational treatment of DIPG.
A new study of cancer in adolescents and young adults (AYAs) showed that cancer incidence is highest among non-Hispanic whites, cancer mortality is highest among non-Hispanic Blacks, and that cancers in AYAs may be molecularly distinct from cancers in younger and older patients.
Joey’s Wings Foundation will co-host a webinar at 1:30pm (ET) on September 23 with Judy Nicholson Kidney Cancer Foundation inviting Dr. Geller from Cincinnati Children’s Hospital to talk about pediatric kidney cancer, including renal cell carcinoma affecting children and young adults.
NCI has planned a Facebook Watch Party on childhood cancer issues on September 23rd at 3:00 pm EDT. Dr. Lori Wiener expert on psychosocial care for for children and young adults with serious illnesses will provide answers to audience questions live on the NCI Facebook page.
Marilyn Li, M.D. will present a webinar on New Insights Underscore the Need to Identify NTRK Fusions in Childhood Tumors at 11:00 am ET on September 24, 2020.
Nonprofit Tech for Good will host a free webinar Tuesday, September 29, 2020 at 1:00 ET to provide tips, strategies, and templates to help foundation gain and retain donors this year on Giving Tuesday and Welcome Wednesday.
The Society for Neuro-Oncology and the Pediatric Brain Tumor Foundation are pleased to announce a virtual discussion on the Impact of COVID-19 on Pediatric Brain Tumor Research and Treatment on September 30 at noon ET. Registration is free and limited to the first 1,000 participants.
The Gabriella Miller Kids First Pediatric Research Program’s will host a webinar on October 6 at 2:00 ET, to share findings from the Kids First study on novel cancer susceptibility mutations in families and demonstrate new features of the Gabriella Miller Kids First Data Resource Portal.
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