Feb 25 2022


1:00 pm - 2:00 pm

Gabriella Miller Kids First Data Resource Center – Community Open House

On Friday, February 25, just ahead of the international observance of Rare Disease Day, you’re invited to join the NIH Common Fund-supported Gabriella Miller Kids First Data Resource Center (Kids First DRC) for a virtual Community Open House event, to learn more about the incredible resources available to the pediatric research community.

  • Find out how data experts, lab scientists, and clinicians are reshaping the traditional model for medical research by sharing resources in real-time and uncovering common links across multiple pediatric diseases
  • Get an overview of the powerful tools that have been developed, and the unprecedented trove of data and resources that have been brought together to make new discoveries in childhood cancer, structural birth defects, and other rare pediatric conditions
  • Hear how advocates and patient families, along with scientists and clinicians, pushed for the creation of a program to advance pediatric disease research faster than ever before
  • Learn how you can support the Kids First DRC’s continued mission, and talk live with our panel of experts

This virtual event is free to the public, and patient families, foundations, and rare disease research advocates are encouraged to join us.

We hope you’ll share details of this event with your friends and peers, and we look forward to seeing you there!


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