CAC2 Survivorship Toolkit

Supported by Neuroblastoma Children’s Cancer Society and Sobah Systems.

The purpose of the Survivorship Toolkit is to gather, cultivate, create, and provide comprehensive resources for various survivorship challenges and concerns that need to be further explored and expanded.

The CAC2 Survivorship Toolkit is an educational tool that provides information for childhood and AYA (adolescent and young adult) cancer survivors and their families and that thoughtfully addresses the spectrum of challenges they often face after treatment. Several wonderful survivorship toolkits exist, but they typically address a limited number of topics. This initiative is designed to collect resources and information in one comprehensive place, without recreating the wheel. This will allow us to highlight organizations that have built reliable and dependable resources and to create additional resources that have been desperately needed but unavailable.

A variety of experts, childhood cancer survivors, nonprofit professionals, and parent advocates have worked tirelessly to make the CAC2 Survivorship Toolkit a reality. Finally, survivors of all ages and all levels of ability will have one comprehensive resource to turn to for information about childhood and adolescent cancer survivorship!

The CAC2 Survivorship Toolkit Objectives

  1. To create a childhood cancer community-wide space to outline information and resources to support childhood cancer survivors and their families.
  2. To empower survivors to better understand the status of their health, and potential to develop side effects throughout the lifespan in order to make health-conscious decisions, be a successful self-advocate, and attain a higher quality of life.
  3. To network agencies, nonprofits, and parent advocates to align messaging when discussing childhood cancer survivorship and quality of life post treatment.

Survivorship Toolkit Introduction

The audience for this project includes: 

  • Survivors
  • Parents and Caregivers
  • Other family members 
  • Those who engage with survivors:

The CAC2 Survivorship Toolkit has been divided into six different categories:

  • Educational Guidance and Planning
  • Insurance and Financial Health 
  • Managing Physical Health and Late Effects
  • Psychosocial/Emotional Health/Wellbeing
  • Transitioning to Adulthood
  • Wellness/Healthy Behaviors

How to Help

Are you interested in volunteering for this project?

Do you have any questions about how you can become involved?

Do you know of an organization that provides programs, services, and other forms of assistance to childhood and adolescent cancer survivors, as well as their parents, caregivers, family members, and other stakeholders?

If you answered yes to any of these questions, please email us at: