CAC2 Members Jack’s Angels, Dragon Master Foundation, Max Cure Foundation, Children’s Cancer Cause, and National Brain Tumor Society joined together with others in the community through the DIPG Advocacy Group to hold the Moonshot4Kids Congressional Briefing on February 13 to raise awareness of H. Res. 114, which “Expressing support for the designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.”
You can read more about the Briefing and H. Res. 114 at CAC2 Blog Post #Moonshot4Kids.
According to CAC2 member Janet Demeter (Jack’s Angels) H. Res 114 and the Briefing put “a spotlight on the dark places where children with deadly disease fall through the cracks of the medical research industry. This team hopes that others in the community will encourage legislators to support this effort to raise awareness to the urgent need for greater attention to all deadly, pediatric disease, not just DIPG, which is invariably neglected in the current investment culture dominating the industry. It’s meant to open doors for other childhood cancer legislation, and the current, modest allocations which are so hard fought for, for STAR and others. It shouldn’t be such a fight, it should be a no-brainer, pardon the pun… But with brain cancer leading the way for all children with cancer, because it is the deadliest, we hope to make a plea for all children fighting for their lives with inadequate resources. A concrete example for the public, and our Congress, to wrap our heads around is necessary to inspire collaboration and positive change; if it weren’t DIPG it would be something else… it’s high time!”