All posts tagged: Research

CAC2 Webinar–A Personalized Precision Approach to Therapy for Neuroblastoma

May 26, 2017
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In this May's All-Member and Community Webinar, Gavin Lindberg (The EVAN Foundation) hosted physician investigators from the New Approaches to Neuroblastoma Therapy (NANT) clinical trials consortium who presented their work on defining genetic and biologic changes in a patient’s specific tumor that can be used to guide the development of novel more effective therapies, and the choice of therapy for an individual patient. They also discussed the implications of this approach to pediatric cancer in general. Dr. Shahab Asgharzadeh presented about New Approaches to Neuroblastoma Therapy (NANT) Precision Medicine Trial, identifying biomarkers for targeted and immune based therapies. Dr. Asgharzadeh [...] Read more

CAC2 Webinar–The Blood-Brain Barrier: What If You Could Get Drugs Across?

January 26, 2017
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In this January 2017  CAC2 All-Member webinar, we provided an opportunity to our members, associate members, student members, and supporting organizations to learn about emerging technology using ultrasound and microbubbles to deliver therapeutic agents across the blood-brain barrier.  Clay Larsen, President & CEO and Rhodemann Li, Founder, EVP Strategy & Finance, both of Vesselon, presented about their plans for this technology in the pediatric brain tumor population. The blood-brain barrier (BBB) is the body's natural defense mechanism to prevent toxins from entering the brain.  Unfortunately, it also prevents 99% of all therapeutic molecules from getting to their target to treat many diseases, [...] Read more

CAC2 Webinar–The Blue Ribbon Panel Report and Pediatric Cancer

October 3, 2016
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Earlier this year, as part of Vice President Biden’s Cancer Moonshot initiative, the White House established a Blue Ribbon Panel of experts to report on the current challenges and opportunities facing cancer research. In this CAC2 Research Interest Group webinar for September1 2016, CAC2 welcomed Blue Ribbon Panel members Dr. Peter Adamson (Chair of the Children's Oncology Group) and David Arons (CEO of the National Brain Tumor Society) in a discussion of the panel’s recently issued report and its implications for pediatric cancer. https://youtu.be/QGlWWQrcBlo Read more

CAC2 Member Blog–Three Words I Heard from my Pediatric Oncologist that Still Haunt Me

September 28, 2016
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By CAC2 Member Kayla Funk, Open Hands, Overflowing Hearts   The world stopped spinning for a moment. Time beyond the oncology clinic stood still. Though I knew he was right, I refused to believe my doctor and the words coming out of his mouth. “When neuroblastoma progresses through therapy, we are unable to cure it.” I listened, but I ignored him. I was 19 years old and had spent the last 15 months of my life going through gruesome treatments. The cancer should not have grown. “We will try to suppress your disease for as long as possible, but I don’t […]

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CAC2 Webinar–Cavatica: The Promise of Big Data

July 20, 2016
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In this CAC2 Research Interest Group webinar for July 2016, CAC2 welcomed host Dr. Adam Resnick of the Children's Hospital of Philadelphia, Dr. Javad Nazarian of Children's Nationwide Hospital, and CAC2 member Amanda Haddock (Dragon Masters Foundation) discussing the Cavatica platform and how it can bring pediatric cancer research in line with the adult initiatives. Dr. Reznick presented about Cavatica, an exciting new cloud-based environment for securely storing, sharing and analyzing large volumes of pediatric brain tumor genomics data.  Cavatica will, for the first time, allow doctors, researchers and data scientists unparalleled access to pediatric brain tumor genomic data paired with a [...] Read more

CAC2 Webinar–Epigenetics, Pharmacogenetics and Pharmacogenomics

April 14, 2016
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In this CAC2 Research Interest Group monthly webinar, presented on April 13, 2016, we welcomed Dr. John Maris, Giulio D'Angio Endowed Professor of Pediatric Oncology at the Children's Hospital of Philadelphia and the Perelman School of Medicine at the University of Pennsylvania.  Dr. Maris shared with us the process of learning causations, mutations, and finding targets in childhood cancer. https://youtu.be/pYEoQtK0RqQ Read more

CAC2 Webinar–Scientific Meetings: Tapping the Resource

January 20, 2016
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Attending scientific meetings is a fantastic opportunity for advocates and funders of pediatric cancer research.  CAC2 member Donna Ludwinski (Solving Kids Cancer), presented our January webinar as a primer to help you navigate these types of opportunities: Topics covered included getting the most out of​ scientific meetings list of major meetings of interest planning objectives networking reporting sponsorship Additionally, CAC2 member Phil Renna (Christina Renna Foundation, Inc.) updated everyone on our CAC2 Research Conference planned for this fall. This information will help all of our members get the most out of this fall's research conference and any other research conferences they may have the opportunity to attend. https://youtu.be/bq0E40dhpIE Read more

CAC2 Webinar–Psychosocial Standards of Care for Children with Cancer and Their Families

December 19, 2015
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In this All-Member webinar for December 2015, CAC2 welcomed presenters: Dr. Lori Wiener--Co-director of the Behavioral Science Core and Head of the Psychosocial Support and Research Program at the pediatric oncology branch of the National Cancer Institute Dr. Mary Jo Kupst--Pediatric psychologist and Emerita Professor of Pediatrics at the Medical College of Wisconsin Dr. Anne E. Kazak--Co-director of the Center for Healthcare Delivery Science at Nemours Children’s Health System, A. I. du Pont Hospital for Children Psychosocial Standards of Care for Children with Cancer and Their Families will be published in December 2015 in a special supplement of Pediatric Blood & Cancer. [...] Read more

CAC2 Webinar–Childhood Cancer Survivorship: The Consequences of Cure

November 20, 2015
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We were pleased to host guest panelist Dr. Greg Armstrong of St. Jude Children's Research Hospital who provided our November All-Member webinar. In just half a century, we have witnessed a remarkable improvement in survival of childhood cancer. In the 1960’s less than 30-40% of children diagnosed with a malignancy would achieve five-year survival. Now, over 80% of children diagnosed with cancer will become five-year survivors of their disease. As a result, 2013 it was estimated that there were over 420,000 survivors of childhood cancer in the United States, and that by the year 2020 we would cross the threshold of [...] Read more

CAC2 Webinar–Analyzing the International Cancer Research Portfolio (ICRP)

August 19, 2015
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On Wednesday, August 19, 2015, CAC2 hosted an All-Member webinar featuring guest panelist Lynne Davies discussing, exploring, and explaining: Analyzing the International Cancer Research Portfolio (ICRP). One of our CAC2 projects, grounded in our Research Interest pillar, was to provide a way to keep track of research funded by our members. The result was that we chose to join and participate in the International Cancer Research Partnership (ICRP). The ICRP portfolio contains over 70,000 historical and current awards from funding organizations in the US, Canada, Europe, Japan and Australia. This webinar demonstrates how to analyze and interpret the information in [...] Read more
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