The National Cancer Institute’s new Molecular Characterization Initiative (MCI) fosters data sharing in childhood cancer research. The program currently offers comprehensive molecular characterization of tumors to children, adolescents, and young adults (AYAs) with newly diagnosed central nervous system tumors receiving care at hospitals affiliated with the Children’s Oncology Group. The DNA and RNA in participants’ tumors are analyzed through this voluntary, free program. Participants’ tumor and blood samples are analyzed in an accredited lab, with results shared with families and doctors within 21 days. This detailed information about the cancer can be used to make a more precise diagnosis, […]
Read moreOn Friday, February 25, just ahead of the international observance of Rare Disease Day, you’re invited to join the NIH Common Fund-supported Gabriella Miller Kids First Data Resource Center (Kids First DRC) for a virtual Community Open House event, to learn more about the incredible resources available to the pediatric research community. Find out how data experts, lab scientists, and clinicians are reshaping the traditional model for medical research by sharing resources in real-time and uncovering common links across multiple pediatric diseases Get an overview of the powerful tools that have been developed, and the unprecedented trove of data and […]
Read moreJoin the Children’s Brain Tumor Network(CBTN)’s operations center team as they address questions and technical issues related accessing CBTN data and conducting research within the Gabriella Miller Kids First Data Resource Portal, CAVATICA, and PedcBioPortal.
Read moreThe aims of the public symposium are to provide an update on progress of the initiative, to hear from the childhood cancer community on recent research, and to gain input from the broad community on the activities of CCDI. The agenda, registration, and abstract submission details for poster presentations are forthcoming. Please email Childhood Cancer Data Initiative if you have any questions. We look forward to seeing you in November 2021. About CCDI CCDI is building a community centered around childhood cancer care and research data. Through enhanced data sharing, we can improve our understanding of cancer biology to improve […]
Read moreThe webinar will include an update on the program from NIH staff, and presentations featuring findings from Kids First investigators and other data users from the pediatric research community. In addition, the Kids First Data Resource Center (Kids First DRC) will demo the latest analysis tools and resources in development within the Kids First Data Resource. Researchers, patients, and foundation communities are invited to attend this open session. Webinar Agenda (Tentative): Introduction – NIH Kids First Staff Findings from the Kids First X01 Project on Familial Predisposition to Hematopoietic Malignancies – Jamie Flerlage, MD, MS Q&A Session w/ Dr. Flerlage […]
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