All posts tagged: Drug Shortages

Member Blog–When the National Drug Shortage Becomes Personal

By CAC2 Individual Member Jennifer Flowers Rhabdomyosarcoma became a common word in my family when I was three years old. By the time of diagnosis, the cancer had metastasized from the middle ear into the mastoid and eustachian tube. The University of Michigan’s C.S. Mott Children’s Hospital oncology team told my parents there was less than a three percent chance for me to live out the year. There was no definitive treatment protocol to defeat this rare form of cancer, and the survival rate was extremely low. Over the next two and a half years, I underwent surgeries, full head […]

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CAC2 Special Community Webinar–Vincristine Drug Shortage Update

Dr. Peter Adamson, Chair of the Children's Oncology Group (COG), shared information that COG has received along with a perspective on childhood cancer drug shortages, including the current situation with vincristine.  We were pleased to join with the Alliance for Childhood Cancer to invite members of the two coalitions and the wider community this Community webinar.  We offered this webinar so that the community could have a better understanding of the shortage, how to work with care providers, how to contact the FDA when problems arise from the shortage, and advocacy steps being taken. PUT_CHARACTERS_HERE Read more

From the Congressional Childhood Cancer Caucus–Concerns about Daunorubicin Shortage

Link to Original on the Congressional Childhood Cancer Caucus website Nov 12, 2013 Caucus Asks Questions about the Ongoing Shortage of Daunorubicin WASHINGTON, D.C. – Out of concern over the ongoing shortage of daunorubicin, an essential therapy in the treatment of leukemia in children, Representatives McCaul and Van Hollen, the co-chairs of the Congressional Childhood Cancer Caucus, sent letters to the Food and Drug Administration  (FDA) and Teva Pharmaceuticals, the sole remaining supplier of the drug. As of this summer, Teva Pharmaceuticals was the sole remaining supplier of the drug. Teva recently informed the FDA that the drug was in limited supply and that […]

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