All posts tagged: Family Support

A Tribute to Pediatric Cancer Caregivers: Honoring Heroes

February 16, 2024
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At the Coalition Against Childhood Cancer (CAC2), we extend our deepest gratitude to our community’s current and former caregivers. They embody compassion, resilience, and unwavering support for children, adolescents, young adults, and their families confronting a cancer diagnosis or the many complications that arise in survivorship. Caring for a child with cancer is a profound journey marked by a mix of emotions, challenges, and unyielding love. In the shadows of this harrowing ordeal stand the caregivers, often unsung heroes, beside young patients. On this National Caregivers Day, we acknowledge their pivotal roles and the extraordinary commitment they bring to the […]

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Compassionate Counseling Services are Available for Families Dealing with Pediatric Cancer

December 11, 2023
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A pediatric cancer diagnosis can shatter the world of any family, plunging them into a challenging and emotionally tumultuous journey. Amidst the physical and medical aspects of treatment for the diagnosed child, the psychological toll on the families should not be underestimated. Recognizing the importance of mental health support becomes paramount to helping families cope, heal, and find hope in the face of childhood cancer. The Emotional Impact: Pediatric cancer not only affects the child diagnosed, it reverberates throughout the entire family and primary caregivers. Parents and grandparents often grapple with a rollercoaster of emotions—fear, anxiety, guilt, and helplessness. Siblings […]

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CAC2 Webinar–Finding Families to Serve

October 25, 2021
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  In our October CAC2 All-Member webinar.  Amy Godkin (ASK Foundation) helped us host a panel program that included Kim Buff (Momcology), Heather Held (Pediatric Brain Tumor Foundation), and Robyn Dillon (LCSW, Pediatric Hematology and Oncology, Children's Hospital of Richmond) who spoke on: Finding Families to Serve The panelists shared information on their success in the area of finding families to serve and how you can work with treatment centers to become a trusted partner. Finding Families to Serve Video Finding Families to Serve Handout Read more

CAC2 Webinar–The Art and Science of Navigating the Clinical Trials Landscape for Childhood Cancer

June 18, 2020
Webinars No comments yet
Our June CAC2 All-Member webinar explored the world of clinical trials and helped us understand the important role of clinical trial navigation, a topic that is growing in importance as the number and variety of options for pediatric and adolescent oncology patients has begun to grow. Brenna Carswell, Clinical Trials Navigator at Alex’s Lemonade Stand Foundation, and Michael Wenger, Vice President of Patient Engagement at Trialscope, covered the basic trends in trial enrollment and the challenges and solutions to improving access to clinical trials for children and teens with cancer.  Both Brenna and Michael are cancer survivors! Read more

AACR Sponsored Listening Session with FDA

May 27, 2020
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The American Association for Cancer Research (AACR) and the U.S. Food and Drug Administration (FDA) recorded a listening session on May 27, 2020 for patient advocates to learn more about cancer clinical trials during COVID-19.  The session is about 45 minutes, with the pediatric questions at about minute 25.5, minute 37, and minute 41.   FDA Listening Session:  Oncology and Covid-19

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Members Help Each Other Spread the Word to Families During the Pandemic

March 25, 2020
Collaborative Achievements No comments yet

CAC2 Members Greg Aune, Max Cure Foundation, and Solving Kids Cancer helped to bring answers to a community in turmoil over the Covid 19 crisis by co-promoting each others’ webinars to get information into more people’s hands: Dr. Gregory Aune “COVID-19: Addressing Family Concerns for Children with Cancer and Survivors” Dr. Timothy Cripe “Latest COVID-19 Insights from Doctors + Stories from the Frontline to inform Childhood Cancer Families & the General Community” Ryan Norton “Stress, Anxiety and Coping with COVID-19: A Conversation for Families in the Childhood Cancer Community”

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Survivorship Matters Blog–Childhood Cancer and Bullying – It’s More Common, and Has Greater Impact, Than You Think

June 3, 2019
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Survivorship Matters Blog By CAC2 Member Mary Beth Collins My introduction to childhood cancer and bullying was in 1999 on a neuroblastoma listserve with ACOR (American Cancer Online Resources), the way parents and specialists congregated together before the explosion of social media channels like Facebook, Twitter, or Instagram. My son had only been in treatment a few months, and a parent was sharing an incident that happened on the playground. Her son had been looking forward to getting well enough to return to school, and his fellow classmates decided at recess to taunt him by pretending to be afraid of [...] Read more
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