Assorted News from the Last Week:
Yoram Unguru (past CAC2 Summit speaker, bioethicist, and uncle of a pediatric cancer survivor) on the cancer drug shortage. (gated, but excellent)
The Comprehensive Cancer Survivorship Act (CCSA) was introduced in both the U.S. House and Senate. This is a critical piece of comprehensive legislation that will address gaps in survivorship care and develop desperately needed standards to improve the overall patient-centered quality of care and navigation needs of cancer survivors and their families.
“Readers respond to Kate Pickert’s essay about the recent revolution in tackling cancer” includes a letter fromCAC2 Member Gavin Lindberg criticizing the lack of attention to pediatric drug development. (third letter down, possibly gated)
Upcoming Webinars, Online Opportunities, and Meetings:
Rocky Mountain Vintage Racing is pleased to announce a 2-year festival series culminating in 2023 with the FV 60th anniversary on July 28-30. RMVR’s Race Against Kids’ Cancer (RAKC), will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class. Click for more information about Vintage Car Races for Fundraising.
Triage Cancer Webinar: Engaging in Self-Advocacy. Learn practical tips for collecting medical records, talking with health care teams, navigating work and cancer, applying for benefits, filing appeals, identifying inaccurate online information, and more. July 26 1:00 ET. Learn more and register.
Recordings of Recent Past Events:
CCDI be demonstrated how to use the CCDI Hub and CCDI Childhood Cancer Data Catalog. View the slides from the presentation.
CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):
- Robin French (The Morgan Adams Foundation and CAC2 Board Member)
Childhood Cancer International hosted a pair of webinars to celebrate Survivors’ Month. Survivors around the world share the label but not necessarily the experience:
Pediatric Cancer legislation needs your support. Learn more about how to support the Gabriella Miller Kids First Research Act 2.0, the Sawyer Finn ACT, Comprehensive Cancer Survivor Act, Accelerating Kids’ Access to Care Act,and the Give Kids a Chance Act.
Sign up to receive a copy of CAC2's free childhood cancer news digest in your inbox each week.
- CAC2 Childhood Cancer Community News Digest (September 18-24)
- CAC2 Childhood Cancer Community News Digest (September 11-17)
- CAC2 Childhood Cancer Community News Digest (September 4-10)
- CAC2 Childhood Cancer Community News Digest (August 28-September 3)
- CAC2 Childhood Cancer Community News Digest (August 21-27)