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CAC2 News–Great.com Interviews Coalition Against Childhood Cancer About A Future Without Childhood Cancers

Danielle Riberio from Great.com interviewed Coalition Against Childhood Cancer as part of their ‘Great.com Talks With…’ podcast. This series is an antidote to negative news stories that aims to shed light on organizations and experts whose work is making a positive impact on the world. Families affected by childhood cancer face untold challenges. From having to sacrifice work to paying huge medical bills, only a small number of families can afford to make these sacrifices. For the vast majority that cannot, life can be extremely difficult for both patient and family members. In this episode, Danielle talked with Vickie Buenger, […]

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CAC2 Webinar–Better Together: Survivorship Connection

In our February CAC2 All-Member webinar CAC2 invited the Survivorship Interest Group's Better Together committee to discuss their Project Incubator initiative.  Led by Mariah Forster Olson, and joined by committee members, Nick Giallourakis and Carolyn Breinich, this project would enable survivors and their parents, caregivers, and other family members, as well as nonprofit organizations and healthcare professionals, to be connected with available resources, programs, and services to assist in the lifelong journey of childhood cancer survivorship. This will be accomplished using our Better Together spreadsheet, as well as a unique, personalized approach. Read more

CAC2 News–Ethics Think Tank White Paper Accepted at SIOP 2021

Access to the most promising pediatric cancer treatments is often achieved by participating in clinical trials. And private, nonprofit organizations have become a significant source of funding for these trials that are often left behind by industry. Drug development for pediatric cancer has expanded in recent years because nonprofits are stepping up. But federal reporting standards do not apply to nonprofits leaving them to try their best and hope for the best. This lack of formal oversight raised questions for a number of CAC2 members about the ethical, legal, and social commitments between non-profit funders and the patient communities they [...] Read more

Primer on State Cancer Action Plans Training Meeting

State-level advocacy is becoming a big opportunity across the country as it gives advocates another way to get involved in addition to going to DC.  This has been more and more apparent over the last year as people haven't felt comfortable traveling as much. The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) co-hosted an online advocacy training meeting focused on State Cancer Action Plans on May 11.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies [...] Read more

Primer on State Cancer Action Plans Training Meeting

The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) are pleased to invite you to a jointly convened online advocacy training meeting focused on State Cancer Action Plans.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies to help inform and guide communities in the fight against cancer. Primer on State Cancer Action Plans Click above to register (Zoom details to follow) Tuesday, May 11, 2021 7:00-8:30 pm ET 6:00 CT, 5:00 MT, 4:00PT Currently, only 21 [...] Read more

Registration Open: CAC2 2021 Annual Summit

Registration is now open for CAC2’s 2021 Annual Summit, taking place virtually Thursday, June 24th and Friday, June 25th.  This year we will meet two consecutive afternoons on Zoom.  The CAC2 Meetings Team has designed a robust program that will balance expert content presentations with opportunities for active engagement for attendees. We will kick off the first day at noon ET with a session welcoming New Members and giving them the chance to “meet & greet” each other and learn how to engage the many resources and opportunities available to CAC2 members.  The afternoon will also include the members-only Business […]

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Presenting Mandy Spielvogle Powell, CAC2 Managing Director

By CAC2 President Vickie Buenger At our January 2020 board retreat in Philadelphia, the CAC2 Board of Directors began what will ultimately be an 18-month leadership transition, carefully designed to ensure long-term sustainability of the organization. In March 2020, we presented our draft succession roadmap to all of you during the All-Member Webinar, and we have made every effort to keep you apprised of this process over the past year. We are now at the 14-month mark of this succession work and have exciting news to share:  We have selected and hired CAC2’s first Managing Director! This thorough, thoughtful process was executed by […]

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CAC2 2020 Annual Summit

Over 100 CAC2 members and guests gathered for a special online event on Friday, July 17, 2020 to attend our 8th Annual Summit Speaker Program and Annual Members' Business Meeting.   Our volunteer Meetings Team designed a carefully curated two-hour version of our traditional Annual Summit accessible to all. Dr. Doug Hawkins, newly elected Chair of the Children’s Oncology Group, speaking on his vision for COG, with Q&A on how parent patient advocates fit into that vision and The RACE Act on the Eve of Implementation Panel, a conversation moderated by Dr. Stacey Adam (FNIH) featuring Dr. Malcolm Smith (NCI), Dr. Martha Donoghue (FDA), [...] Read more

CAC2 Member Guide to Navigating Covid19

If you want to know what the $2.2 trillion CARES Act economic relief package means for nonprofits, donors, and individuals, have asked yourself "what can I do?" want to brush up your leadership skills or explore ideas to help with fundraising in a crisis, or just need accurate and reliable information, then the CAC2 Member Guide to Navigating the Covid-19 crisis may help.  Members have worked together to build this document to help organizational and individual members during this unprecedented crisis.     If we have overlooked an essential resource, let us know here:  Suggest a Resource for the Guide.   You [...] Read more

CAC2 Webinar–FundingMatch.com: CAC2’s Searchable Website to Match Like-Minded Organizations

In celebration of Childhood Cancer Awareness Month, we hosted Melisse Skelton (CureSearch) and Oscar Ortiz (SebastianStrong) who used the occasion of our September CAC2 All-member webinar to explain the latest project that is developing in the CAC2 Project Incubator. PUT_CHARACTERS_HERE We learned about a new project proposed by CAC2 members to create a searchable website for organizations with like-minded missions to connect, collaborate, fund research and other projects with a goal of preventing duplication of effort and creating a more coordinated funding effort to support researchers. This database will be used to match key stakeholders (CAC2 foundations) and facilitate collaboration as well [...] Read more

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