CAC2 Childhood Cancer Community News Digest (May 15-21)

Assorted News from the Last Week:

About one-third of children and two-thirds of adults with relapsed or refractory neuroblastoma responded to single-agent lorlatinib.

Bereaved parents prioritized satisfactory symptom management above all other aspects of end-of-life care for their children who died of cancer, study results showed.

Lenalidomide is a safe and effective therapy for children with pilocytic astrocytomas and optic pathway gliomas.

Delivering childhood cancer care in fragile and conflict settings: best practices from the occupied Palestine territory

Upcoming Webinars, Online Opportunities, and Meetings:

NCI’s Office of Advocacy Relations would like to invite you to the upcoming webinar, Introduction to the NCI Surveillance, Epidemiology, and End Results (SEER) Program, to be held May 25 from 1pm – 2pm ET.  Click here to join the meeting.

Registration has opened for the CAC2 2023 Annual Summit, presented by Day One Biopharmaceuticals! This year’s conference takes place from noon, Monday, June 19 through 2:00 pm, Wednesday, June 21, 2023, in Atlanta, GA, at Children’s Healthcare of Atlanta Emory University.  Click here for more information and to register.

MIB Agents Osteosarcoma Alliance FACTOR 2023 Conference brings together the leading osteosarcoma researchers and clinicians, along with patient families and OsteoWarriors (survivors, patients and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  Click here for more information.

Give Kids the World Summer Road Trip! From June 17-26, GKTW visit 10 amusement parks and offer a day of fun for our incredible Alumni families for free.  Summer Road Trip info can be found here:

Take Action:

Pediatric Cancer legislation needs your support.  Learn more about how to support the Gabriella Miller Kids First Research Act 2.0, the Sawyer Finn ACT, and the Give Kids a Chance Act.

The International Agency for Research on Cancer (IARC) and partner institutions are now accepting applications for an online course on the registration of cancer in children.  Click here for more information.

The U.S. Food and Drug Administration’s Center For Devices and Radiological Health (CDRH is searching for applicants for vacancies for Voting Members for the Patient Engagement Advisory Committee (PEAC) and 2) finding diverse Special Government Employees (SGEs) with specific specialties.  Click here for more information.


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