LivingLFS
Mission:
We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Website:
Phone:
844-537-2255
Email:
Director:
Greg Harper
LivingLFS
Categories
- Blog Posts (98)
- Explainer Post (12)
- Guest Blogs (16)
- Member Blogs (40)
- Survivorship Matters Blog (9)
- CAC2 News (25)
- Collaborative Achievements (14)
- Community News (258)
- In Memoriam (2)
- News Digest (207)
- Webinars (64)
Tags
Advocacy (56)
Annual Summit (7)
Appropriations (1)
Awareness (26)
AYA (2)
Bereavement (1)
Best Practices (14)
Biorepositories (2)
CAC2 News (9)
CAC2 Projects (11)
Call to Action (27)
Call to Action Prevention (1)
Care Giving (1)
Clinical Trials (11)
COG (2)
Collaboration (14)
Data (15)
Delayed Diagnosis (2)
Digest (12)
Drug Development (12)
Drug Development collaboration (1)
Drug Shortages (3)
Ethics (1)
Family Support (16)
FDA (2)
Funding Research (7)
Genomics (6)
Global News (4)
Industry Perspective (5)
Member Access (12)
NCI (3)
Nutrition (2)
Post-Mortem Tissue Donation (1)
Prevention (3)
Psychosocial Support (6)
Rare and Ultra Rare Cancer (1)
Rare Cancers (1)
Regulations (3)
Research (36)
Research Data (2)
Research Tissue Donation (1)
Social Work (1)
state advocacy (1)
Survivorship (29)
Venture Philanthropy (3)