CAC2 Childhood Cancer Community News Digest (May 2-8)

Assorted News from Last Week:

The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers.

Recently, CCDI launched the CCDI Data Catalog web application, part of the CCDI Data Ecosystem.

Adolescent and young adult (AYA) cancer survivors have a significantly increased risk for developing a new cancer and dying from that cancer, according to a population-based study.  These younger cancer survivors had a 25% higher risk for cancer incidence, and an 84% higher risk for cancer death, compared with the general population, reported Hyuna Sung, PhD, of the American Cancer Society, and colleagues.

Certain childhood tumors have an extreme need for amino acids. Scientists have now discovered the molecular mechanisms underlying this and how the cancer cells could be turned off.

Upcoming Webinars, Online Opportunities, and Meetings:

On May 11 at 2:00-4:00 ET, join the NIH Common Fund for another public webinar.  Register to hear updates from the Gabriella Miller Kids First Pediatric Research Program (Kids First), as well as latest research findings from Kids First investigators. The Kids First Data Resource Center (Kids First DRC) will also be on hand to present updates on the latest analysis tools and resources in development within the Data Resource.

On Thursday, May 19 at 1:00 ET, CAC2 Member PREP4Gold will present a prevention webinar on the topic of  Childhood Cancer Prevention: The Ultimate Form of Cure. Don’t miss this opportunity to gain a better understanding of prevention of childhood cancer, and how you can get involved in this important advocacy. Register link.

Virtual Triage Cancer Conference on Saturday, May 21, 2022  7am-3:30pm PT | 9am-5:30pm CT | 10am-6:30pm ET include sessions on:

Being an Empowered Patient and Advocate
Health Insurance: Understanding Your Options & Using Your Coverage
Practical Tools for Managing Medical Bills, Your Financial Health, & Estate Document
Employment Issues: Working Through Treatment and Taking Time Off
Disability Insurance: Options, Applications, & Appeals

The U.S. Food and Drug Administration and the Duke-Margolis Center for Health Policy will convene a virtual public workshop on May 24 and 25, 2022, to present best practices and use cases for successfully bringing forward evidence generated through translational science for regulatory submissions.

The 20^th International Symposium on Pediatric Neuro-Oncology, ISPNO 2022 from 12 – 15 June 2022, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) in Hamburg, Germany, from 11 – 12 June 2022.  Registration link.

Recordings of Recent Past Events:

Danielle Riberio from Great.com interviewed Coalition Against Childhood Cancer as part of their ‘Great.com Talks With…’ podcast.

Take Action:

The following Action Opportunities are sponsored by Childhood Cancer International (CCI) to aid children with cancer and their families in the Ukraine.  CAC2 is a member of CCI.

The campaign to support Ukrainian families is called the Ukrainian Childhood Cancer Emergency Fund.  All funds will be centralised on CCI Europe’s bank account and spent following a strict and transparent workframe including regular reports.

Childhood Cancer International has a call for real life stories to focus attention on the childhood cancer community. “We will be using actual stories from real people worldwide, including: patients and their families, survivors, bereaved parents and health providers. For this, we need your help. We want to highlight what CCImembers organizations are doing in each region and the impact they are having. Our goal is to portray testimonials from all around the globe, so your inputs are crucial.”  This is an open invitation.  We want to expand your voice and to give visibility to everyone.  Submit stories here.