CAC2 Childhood Cancer Community News Digest (February 6-12)

We are pleased to invite CAC2 members, associate members, student members, and supporting organizations to our February CAC2 All-Member webinar:  Pediatric Cancer Advocacy In Your Own Backyard  on Wednesday, February 15 at noon ET.  Register Here

The International Replication Repair Deficiency Consortium (IRRDC) is hosting its 3^rd educational webinar on Constitutional Mismatch Repair Deficiency (CMMRD) syndrome on February 15, 2023 from 1:30 -3:00pm ET. Click here for more information.

On February 15th 6:00pm – 7:00pm ET there will be Q&A Zoom event to hear from Mariella G. Filbin, MD, PhD; Co-Director, Brain Tumor Center of Excellence; Director for Research, Pediatric Neurooncology Program Dana-Farber/Boston Children’s Cancer and Blood Disorder Center; Assistant Professor of Pediatrics, Harvard Medical School. She will discuss her research with pediatric brain tumors including DIPG and how The Sajni Chakrabarti Fund for Pediatric Brain Cancer Research has been supporting her work.  Click here for more information.

On February 19-22, 2023, the San Antonio Pediatric Cancer Symposium (SAPCS), hosted by the Greehey Children’s Cancer Research Institute – UT Health San Antonio, in conjunction with the Mays Cancer Center, will bring together some of the most respected childhood cancer researchers from academia and industry to the Marriott Riverwalk; to discuss how today’s advances in basic and translational sciences are impacting tomorrow’s therapies and diagnoses.  Click here for more information.

Buddy’s Place offers an 8-week support group each spring and fall. While children and teens engage in goal-oriented activities that are age-appropriate, parents and caregivers participate in a group focused on understanding children’s grief and how to better help the children work through it. The Spring 2023 Session will begin on March 21, 2023 and the Fall 2023 Session will begin on September 11, 2023.  Click here for more information.

On Friday, March 24, 2023 from  9:00 a.m. – 5:00 p.m. ET NCI is gathering experts from around the country virtually and at the National Institutes of Health campus for the 2023 Childhood Cancer Data Initiative (CCDI) Annual Symposium. The hybrid event will bring together presenters and panelists to discuss CCDI’s progress and opportunities for the future.  Click here for more information and to register.

SAVE THE DATE!  The Alliance for Childhood Cancer is excited to announce that Action Days 2023 will return back to Washington, D.C. from April 24-25, 2023. Registration will open in early 2023.

Recordings of Recent Past Events:

Dr. Kimberly Stegmaier of Dana-Farber Cancer Institute describes the progress her research team has made in Ewing sarcoma. Her team’s work targeting the EWS-FLI fusion, one of the fusion oncoproteins that drives childhood cancers, addresses one of the Cancer Moonshot recommendations set forth by the Blue Ribbon Panel.

January’s CAC2 All-Member webinar provided an opportunity to clear up some of the confusion the IRS Form 990 can cause for many non-profit organizations. In the first half of this webinar, participants learned key information to complete the 990. The second half of the webinar answered questions from participants.

The CAC2 Survivorship Team is building a comprehensive six category Childhood Cancer Survivorship Toolkit to provide info & resources to help survivors/families.  If you have explored resources for your family, or to assist others, THEY NEED YOUR HELP!  Please add your resources using the appropriate form below: