CAC2 Childhood Cancer Community News Digest (May 1-7)

Assorted News from the Last Week:

Analysis finds found that “excellent” survival outcomes were achieved in patients receiving reduced treatment for neuroblastoma as a result of reassignment to intermediate risk from high risk based on a change in the minimum age for high-risk disease classification in Children’s Oncology Group (COG) risk stratification.

Study explores psychosocial needs of African American parents of children with cancer.

Newly developed competencies for Pediatric Palliative Care psychologists highlight unique contributions to PPC patient care and research and provide a framework for highlighting psychology’s value in this emerging subspecialty.

STAT interviews Emily Whitehead, of CAC2 Member Emily Whitehead Foundation as she turns 18 and graduates (gated).

Lenalidomide demonstrates a sufficient level of activity in children with low-grade glioma in children  to warrant further exploration.

Optimizing pediatric leukemia care in countries with limited resources.

U.S. Congressmen Michael McCaul (R-Texas) and Mike Quigley (D-Ill.) introduced a resolution recognizing May 2023 as National Brain Tumor Awareness Month.

Upcoming Webinars, Online Opportunities, and Meetings:

Triage Cancer will host a free webinar at 1:00 pm ET on Wednesday May 17.  The speakers will discuss COBRA, the medical marketplace, Medicare, Medicaid, and much more. Learn how to compare options to find an affordable plan that meets individual needs.  Click here for more information and to register.

NCI’s Office of Advocacy Relations would like to invite you to the upcoming webinar, Introduction to the NCI Surveillance, Epidemiology, and End Results (SEER) Program, to be held May 25 from 1pm – 2pm ET.  Click here to join the meeting.

Registration has opened for the CAC2 2023 Annual Summit, presented by Day One Biopharmaceuticals! This year’s conference takes place from noon, Monday, June 19 through 2:00 pm, Wednesday, June 21, 2023, in Atlanta, GA, at Children’s Healthcare of Atlanta Emory University.  Click here for more information and to register.

MIB Agents Osteosarcoma Alliance FACTOR 2023 Conference brings together the leading osteosarcoma researchers and clinicians, along with patient families and OsteoWarriors (survivors, patients and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  Click here for more information.

Give Kids the World Summer Road Trip! From June 17-26, GKTW visit 10 amusement parks and offer a day of fun for our incredible Alumni families for free.  Summer Road Trip info can be found here:  https://www.gktw.org/roadtrip/.

Recordings of Recent Past Events:

NIH Common Fund’s Gabriella Miller Kids First Pediatric Research Program (Kids First) held their Research Showcase featuring latest Kids First research updates and current opportunities for research funding and collaboration through the National Institutes of Health (NIH).  Click here to view the recording.

Take Action:

Precious Jules Childhood Cancer Foundation has opened its 2023 Pediatric Oncology Grant for $50,000 grant.

The International Agency for Research on Cancer (IARC) and partner institutions are now accepting applications for an online course on the registration of cancer in children.  Click here for more information.
The U.S. Food and Drug Administration’s Center For Devices and Radiological Health (CDRH is searching for applicants for vacancies for Voting Members for the Patient Engagement Advisory Committee (PEAC) and 2) finding diverse Special Government Employees (SGEs) with specific specialties.  Click here for more information.

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