CAC2 Childhood Cancer Community News Digest (July 15-21)

Special virtual Town Hall event focusing on the Accelerating Kids Access to Care Act Jul 24, 2024 3:00 PM ET.  Click here for more information and to register.

Rocky Mountain Vintage Racing is pleased to announce a 2-year festival series culminating in 2023 with the FV 60th anniversary. RMVR’s Race Against Kids’ Cancer (RAKC), will be at High Plains Raceway August 2-4, 2024.  Click here for more information and to register.

56^th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Past Recordings

Michael Fisher, MD, highlights the sessions and presentations at the International Symposium on Pediatric Neuro-Oncology.

To address this year’s theme: “Childhood Cancer Stigma and Communications,”  Childhood Cancer International held two open webinars that tackled different issues related to childhood cancer and survivorship.  Two CAC2 members, Board Member and survivor Mariah Forster Olson (Neuroblastoma Children’s Cancer Society) and Anna Sorkin (Individual Member)  served as panelists.

Take Action:

ChadTough and My DIPG Navigator is seeking to hire a social worker to help patients and their parents navigate day-to-day challenges associated with DIPG/DMG and connect them with the help they need including emotional, medical, and financial resources. The My DIPG Navigator Social Worker (SW) will support all families in the program and work alongside the team of Nurse Navigators.  Click here for more information.

The FDA and CTTI announced the call for applications for new members of the Patient Engagement Collaborative (PEC). The PEC is an ongoing, shared forum in which the patient community (PEC members), FDA, and CTTI discuss a variety of topics such as improving communication, education, and patient engagement related to medical product regulation.

Try out the monthly donation platform dedicated to childhood cancer that helps nonprofits and warrior-parents team up to raise money for research, family support, and advocacy offered at no charge by Hello Cure. 

CAC2 Member the Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.

CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details.  Click here for the IRB Approval document.