CAC2 Childhood Cancer Community News Digest (January 27-February 2)

February 3, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

A recent study indicates that children and young adults with cancer face an elevated risk of dying if they live in previously redlined neighborhoods—residential areas marked in the 1920s–1930s by lenders as undesirable for mortgage loans due to their racial demographics.

International convention: Defeating childhood and adolescent cancer and reducing global disparities.

Landscape of global pediatric oncology publications: A cross-sectional analysis.

New research explains why immunotherapy is less effective in children with cancer.

Epigenetic states during development establish cancer risk before birth.

Teens with cancer report worse pain, mental health a year after advance care planning.

In Nature:  Transforming paediatric AML trials: from failing one-size-fits-all methods to precision oncology. (gated)

Elective discontinuation of Larotrectinib in pediatric patients With TRK fusion sarcomas and related mesenchymal tumors.

Innovative research aims to improve childhood cancer care in low- and middle-income countries.

Opportunities in the translational pipeline for pediatric brain cancer therapies.

Upcoming Webinars, Online Opportunities, and Meetings:

Ohio’s 4th Annual Childhood Cancer Summit is a free, virtual event is open to all and will be held on February 4, 2025 between 9-4:30pm ET. Click here for more information and to register.

ACCELERATE Multi-stakeholder Conference “A Decade of Impact – and Beyond” on February 6th & 7th in Brussels Belgium. In-person and virtual registration available.  Click here for more information and to register.

Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

The 2nd Childhood Cancer Prevention Symposium will be held in Houston, TX, at Texas Children’s Hospital, February 10-13, 2025. Click here for more information and to register.

Community webinar exploring children’s and young people’s cancers will explore how clinical research and how clinical trials to deepen our understanding of cancer biology and treatment for children’s and young people’s cancers, February 12, 10:00 ET.  Click here for more information and to register.

Join Gray for Glioblastoma and After Hours for Valentine’s evening at La Maison Française of the French Embassy to support brain cancer research on February 14, from 7:00-11:00 ET.  Click here for more information to register.

Recent Recordings:

During the CAC2 January webinar “Fit for Filing ” presenters explored how research funders can encourage academic and industry partners to design and conduct clinical trials that produce data suitable for regulatory filing.

Take Action:

The 2025 ASCO-Sponsored Patient Advocacy Booth will provide 50 complimentary exhibits to patient advocacy organizations at the ASCO Annual Meeting. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Applications will be accepted between Monday, January 20 at 10:00 AM (ET) and Monday, February 3 at 5:00 PM (ET). Once the application period opens, the link to the application will be available on Cancer.Net.

Would you like to play a part in helping the world’s 21 million children with life-limiting conditions get the palliative care support they deserve?  The International Children’s Palliative Care Network (ICPCN) (a registered charity, working globally to improve the care provided to children with a terminal illness) is hiring three new work-from-home roles.

The Grayson Foundation and The American Childhood Cancer Organization are partnering to bring a Childhood Cancer Awareness specialty license plate to Tennessee residents.  While Tennessee has several children’s hospital license plates, it does not have a general childhood cancer awareness license plate with a gold ribbon.  This is a simple way to honor all the young warriors across the state who are in treatment, in remission, or in Heaven.  The state requires 1,000 preorders before they will begin to produce and issue the new tag.  Will you please help us by sharing this information with your contacts in Tennessee?  If we do not reach 1,000 preorders by 6/30/25, the tag won’t happen.  The link to preorder a license tag is: https://s.acco.org/Reserve-TN-Plate

Last year, Congress left kids with cancer behind. Today, 64 CAC2 member organizations joined over a dozen other organizations urging the new Congress to make them the first order of business. As the new legislative year begins we are closely monitoring developments on Capital Hill and within key federal agencies. We continue to believe children with cancer have waited long enough, and that it’s time to finish the job. Please share our CAC2 Letter to Congressional Leadership with #CancelChildhoodCancer and#KidsDeserveBetter on social media to show your support.

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