All posts by CAC2

CC Community News Digest (week of September 21-27)

September 28, 2020
Community News, News Digest No comments yet
Assorted news from the last week: In a Swedish study of how families in pediatric oncology experienced illness‐related information and communication with professionals and within the family, eighty‐six percent of the parents and 71% of the siblings reported that they had not received enough or any information about how the cancer and its treatment could affect the child's psychological health. EMA has published the final version of ‘Preparedness of medicines’ clinical trials in paediatrics - recommendations by the Enpr-EMA working group on trial preparedness.'  Key takeaways:  The definition of “trial preparedness” has been extended and a new term “trial feasibility” has [...] Read more

Childhood Cancer: Cross-Sector Strategies for Prevention Report Released

September 23, 2020
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Some CAC2 Members have spent months working on the Childhood Cancer Prevention Initiatives with a wider community of folks dedicated to working on childhood cancer prevention.  Click the image to access the report and more! Below they have shared links to social media content and videos for the report. Link to the Social Media Toolkit Links to the Childhood Cancer Prevention video: Please like the video on Instagram, and crosspost/share on Facebook and Twitter Link to the ASBC Facebook Live recording of the 9/23 teleconference: https://www.facebook.com/watch/?v=404729213871394&extid=dJ3sJFYFmcI6f5mB Media Folder Click here to view the folder with all of the social media images. Spanish will be added soon! Link to the [...] Read more

CC Community News Digest (week of September 14-20)

September 21, 2020
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Assorted news from the last week: A study by a French research team found “that treatment with growth hormones is not associated with an increased risk of second tumors” for children who survived cancer and later received treatment for growth hormone deficiency. Brigitte Widemann, chief of the Pediatric Oncology Branch for the Center for Cancer Research at the National Cancer Institute, started conducting clinical trials for neurofibromatosis type 1 (NF1) in 2001, and results from the most recent trial holds promise to shrink the tumors or stop their growth. FDA grants rare pediatric disease designation to a second CAR (chimeric [...] Read more

CAC2 Member Blog–An Estimate of the Long-Term Outcomes for Children with Cancer

September 18, 2020
Blog Posts, Member Blogs No comments yet
By CAC2 Member Bob Piniewski, People Against Childhood Cancer Childhood cancer statistics, like all statistics (1), can be confusing.   Any statistic can be used to hide or distort the truth, and even the statistics we trust may only tell part of the story. This essay analyzes some familiar childhood cancer statistics and attempts to draw them together in a holistic way to estimate the projected lifelong outcomes for a child diagnosed with childhood cancer in the United States today.  By lifelong outcomes, we mean what may happen over that child’s entire life--not just today or in five years, but 10, [...] Read more

CC Community News Digest (week of September 7-13)

September 13, 2020
Community News, News Digest No comments yet
Assorted news from the last week: Camp Okizu at Berry Creek, a camp for pediatric cancer patients and their families, sustained significant damage in California's Bear Fire. Early results of a clinical trial show that for children and adults with advanced soft tissue sarcoma, adding the targeted drug pazopanib (Votrient) to chemotherapy and radiation treatment is safe and increases the chances that most of the tumor will be dead before surgery. Study in Pediatric Blood Cancer concludes that physicians can foster trust through patient-centered communication and provision of high-quality information about a child’s cancer. Baltimore Ravens honor pediatric cancer patients. [...] Read more

Guest Blog–September 9 Virtual Day of Action: How to Get Involved

September 9, 2020
Blog Posts, Community News, Guest Blogs No comments yet
By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation Today is the day! The childhood cancer community is joining together today to use our collective voice to build support for funding for the Childhood Cancer STAR Act, the most comprehensive childhood cancer bill ever. Advocates across the childhood cancer community are writing to their members of Congress, posting on social media, and spreading the word to their networks about today’s Virtual Day of Action. If your organization would like to participate, please use these materials so [...] Read more

CC Community News Digest (week of August 31-September 6)

September 6, 2020
Community News, News Digest No comments yet
Assorted news from the last week: National Cancer Institute released its Annual Plan and Budget Proposal for Fiscal Year 2022.  This plan focuses on our enduring top priority — accelerating cancer research — and features four special scientific topics: cancer drug resistance, molecular diagnostics for cancer treatment, obesity and cancer, and cancer survivorship. Major League Soccer and Continental Tire teamed to raise awareness and funds for childhood cancer with the 7th year of the Kick Childhood Cancer campaign. Major League Baseball devoted Saturday, September 5 to childhood cancer activities around the league.  Players wore gold ribbon decals and wristbands, and teams [...] Read more

CC Community News Digest (week of August 24-30)

August 30, 2020
Community News, News Digest No comments yet
Assorted news from the last week: Cancer and its treatment may accelerate the aging process in young patients Research has identified a small molecule compound that may make some medulloblastoma patients respond better to treatment Childhood Cancer virtual Action Day planned for September 9 Chadwick Boseman, who died of cancer Friday at age 43, inspired many in roles as King T'Challa, Jackie Robinson and James Brown, but also used his prominence to lift up children with cancer. CAC2 salutes Members Solving Kids’ Cancer, Momcology, Ty Louis Campbell Foundation, and the Max Cure Foundation who worked collaboratively with Friends of Karen [...] Read more

Guest Blog–Virtual Day of Action: Join Together on September 9

August 28, 2020
Blog Posts, Community News, Guest Blogs No comments yet
By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation For nearly 10 years, childhood cancer advocates from around the country have come to Washington, D.C. to participate in the Childhood Cancer Action Days.  Action Days brings our community together to advocate for important childhood cancer issues currently before Congress.  As a result of our advocacy, we have seen many important childhood cancer policies, like the Childhood Cancer STAR Act, become law.  Due to the COVID-19 pandemic, our plans for Action Days had to change this [...] Read more
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