We are proud to share the #WhatCanIDo? Covid19 awareness graphic co-developed and promoted across the childhood cancer community by CAC2 members Be Strong, Fight On!, B+ Foundation, Leukemia & Lymphoma Society, and Momcology.
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All posts by CAC2
Members Help Each Other Spread the Word to Families During the Pandemic
CAC2 Members Greg Aune, Max Cure Foundation, and Solving Kids Cancer helped to bring answers to a community in turmoil over the Covid 19 crisis by co-promoting each others’ webinars to get information into more people’s hands: Dr. Gregory Aune “COVID-19: Addressing Family Concerns for Children with Cancer and Survivors” Dr. Timothy Cripe “Latest COVID-19 Insights from Doctors + Stories from the Frontline to inform Childhood Cancer Families & the General Community” Ryan Norton “Stress, Anxiety and Coping with COVID-19: A Conversation for Families in the Childhood Cancer Community”
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Protected: Spring 2020 All-Member Webinar
There is no excerpt because this is a protected post.
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Guest Blog–Kids First Second Chance: Engaging the Community in Fostering Pediatric Genomics Research
By Guest blogger Valerie Cotton, Kids First Program Manager, NICHD Childhood cancers and structural birth defects have profound, lifelong effects on children and their families. Birth defects are the leading cause of death in the first year of life, and cancer remains the leading cause of childhood disease-related mortality beyond the first year of life, according to the Centers for Disease Control and Prevention. Moreover, a child born with a birth defect is at a higher risk for childhood cancer, suggesting these conditions may be caused by shared genetic pathways. However, limited data and resources are available to investigate potential genetic [...] Read more
CAC2 Member Blog–#Moonshot4Kids
By CAC2 Member Janet Demeter, Jack's Angels Did you know that brain cancer is the leading cause of death in children with cancer? It’s also one of the least-funded areas of cancer research. DIPG, diffuse intrinsic pontine glioma, is perhaps the deadliest of them all. The experience of DIPG is a terrible wake-up call: with no viable solutions, the discovery that profits and numbers count more than the value of your child’s life, DIPG exemplifies in a profound way the experience that so many children with cancer and their families endure–to watch their children die in utter helplessness. We would [...] Read more
CAC2 Member Blog–Except for Tissue
By CAC2 Student Member Nikki Lyons I always knew I wanted to be a scientist. This meant that when I was younger, I loved watching movies and shows featuring some scientific aspect. Their endless supplies of anything they could possibly need, the sparks of brilliance and the immediacy of working experience piqued an interest but were as far from the truth of the scientific process as they could be. Science is slow and arduous; it can go wrong at any step of the way. The first steps of science are pretty simple, observe something you’re interested in and ask a […]
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CAC2 Member Blog–Jointly Sponsored Moonshot4Kids Congressional Briefing
CAC2 Members Jack’s Angels, Dragon Master Foundation, Max Cure Foundation, Children’s Cancer Cause, and National Brain Tumor Society joined together with others in the community through the DIPG Advocacy Group to hold the Moonshot4Kids Congressional Briefing on February 13 to raise awareness of H. Res. 114, which “Expressing support for the designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.” You can read more about the Briefing and H. Res. 114 at CAC2 Blog Post #Moonshot4Kids. According to CAC2 […]
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Guest Blog–The 4 C’s of the Holiday Season: Chess, Competition, Comaradery, Charity
By Guest blogger C. Davis Buenger Can blitz improve your chess? Maybe yes, maybe no. Can playing blitz could change the world? Team Berlin thinks so! Last month, Team Berlin, an adult chess team in Ohio took up a challenge I suggested to play a three-week holiday competition: whoever improved their chess.com blitz rating the most between December 12 and January 4 would win. To make things more meaningful, each player picked a charity to play for, with the donation pool staked by the participants going to the winner’s choice of charity. Seven team members--Davis Buenger, Scott Harkema, Zach Kountz, [...] Read more
Help for a Grieving Mother
CAC2 Members Sophia’s Fund, Arms Wide Open Childhood Cancer Foundation, and Max Cure Foundation joined together in December to help a grieving single-mother following the death of her son who battled Choroid Plexus Carcinoma for six years. We always appreciate when our members join together and take the extra steps to make a difference.
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CAC2 Special Community Webinar–Vincristine Drug Shortage Update
Dr. Peter Adamson, Chair of the Children's Oncology Group (COG), shared information that COG has received along with a perspective on childhood cancer drug shortages, including the current situation with vincristine. We were pleased to join with the Alliance for Childhood Cancer to invite members of the two coalitions and the wider community this Community webinar. We offered this webinar so that the community could have a better understanding of the shortage, how to work with care providers, how to contact the FDA when problems arise from the shortage, and advocacy steps being taken. PUT_CHARACTERS_HERE Read more