CAC2 Childhood Cancer Community News Digest (April 24-30)

May 1, 2023 Community News, News Digest

Assorted News from the Last Week:

Adding a postinduction course of blinatumomab (Blincyto) to chemotherapy appeared safe and highly effective for treating an aggressive form of acute lymphoblastic leukemia (ALL) in infants.

The European Commission published the long-awaited proposal for the revision of the EU Pharmaceutical legislation, which also includes provisions on medicines for rare diseases and children.  Read the European Childhood Cancer community’s joint statement about the revision.

St. Jude study:  Children with pediatric brain tumors living with supportive environments had less cognitive decline than children living in neighborhoods with economic hardship.

Although reproductive failure after cancer treatment in children and young adults has been extensively described in high-income countries, there is a paucity of data in low-income settings.  This study of patients in Uganda helps bridge the gap.

Among the news at CAC2 Supporting Organization Day One Biopharmaceuticals: Day One dosed the first patient in its pivotal Phase 3 FIREFLY-2/LOGGIC clinical trial evaluating tovorafenib as a frontline therapy for patients newly diagnosed with pLGG.

Upcoming Webinars, Online Opportunities, and Meetings:

Triage Cancer will host a free webinar at 1:00 pm ET on Wednesday May 17.  The speakers will discuss COBRA, the medical marketplace, Medicare, Medicaid, and much more. Learn how to compare options to find an affordable plan that meets individual needs.  Click here for more information and to register.

Registration has opened for the CAC2 2023 Annual Summit, presented by Day One Biopharmaceuticals! This year’s conference takes place from noon, Monday, June 19 through 2:00 pm, Wednesday, June 21, 2023, in Atlanta, GA, at Children’s Healthcare of Atlanta Emory University.  Click here for more information and to register.

MIB Agents Osteosarcoma Alliance FACTOR 2023 Conference brings together the leading osteosarcoma researchers and clinicians, along with patient families and OsteoWarriors (survivors, patients and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  Click here for more information.

Give Kids the World Summer Road Trip! From June 17-26, GKTW visit 10 amusement parks and offer a day of fun for our incredible Alumni families for free.  Summer Road Trip info can be found here:  https://www.gktw.org/roadtrip/.

Recordings of Recent Past Events:

Jezabel Rodriguez-Blanco, of the Darby Children’s Research Institute, Hollings Cancer Center, University of South Carolina, discusses unmet needs for pediatric patients with relapsed brain tumors, including the need for additional treatment approaches for these patients

Take Action:

Precious Jules Childhood Cancer Foundation has opened its 2023 Pediatric Oncology Grant for $50,000 grant.

Childhood Cancer Action Day (sponsored by our friends at the Alliance of Childhood Cancer) has three asks for your federal legislators this year.  Click to learn more.
The U.S. Food and Drug Administration’s Center For Devices and Radiological Health (CDRH is searching for applicants for vacancies for Voting Members for the Patient Engagement Advisory Committee (PEAC) and 2) finding diverse Special Government Employees (SGEs) with specific specialties.  Click here for more information.

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