CAC2 Childhood Cancer Community News Digest (April 7-13)

Assorted News from the Last Week:

A study explores the effects of identifying pediatric cancer survivors at risk for complications, developing targeted interventions, determining where and how to provide life-long risk-based care, and whether providing risk-based surveillance will mitigate the burden of morbidity and mortality among childhood cancer survivors.

A proposed cancer survivorship model that involves interdisciplinary coordination and the use of digital tools has the potential to “move the outcomes needle.”

Only half of adolescents and young adults with cancer get fertility counseling before treatment.

Psychological empowerment interventions that are technology-based significantly improve the psychological well-being of parents of pediatric patients with cancer.

Researchers has developed a new microfluidic device aimed at making treatments safer for children with hyperleukocytosis.

High-Dose methotrexate in children and young adults With ALL and lymphoblastic lymphoma: Results of the randomized Phase III Study UKALL 2011

Treatment, toxicity, and mortality after subsequent breast cancer in female survivors of childhood cancer.

Epigenetic mechanisms controlling human leukemia stem cells and therapy resistance

Childhood cancer in Nigeria: Silent crisis shattering lives, demanding change

Pain risk factors in pediatric cancer

Auditory attention decay noted post-treatment in pediatric cerebellar tumors

Upcoming Webinars, Online Opportunities, and Meetings:

CAC2 will host a free public Webinar on April 17, 2025 noon-1:00 PM ET on The Role of AI from Diagnosis to Treatment for Childhood Cancer. Click here for more information and to register.

CAC2 will host a free public “pop-up” webinar on April 30, 2025 featuring Dr. W. Kimryn Rathmell, immediate past Director of the National Cancer Institute speaking on Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding.

The Coalition Against Childhood Cancer will hold its 2025 Annual Summit, hosted by Children’s National Hospital in Washington DC and presented by Day One Biopharmaceuticals. This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing efforts of our members who are working for a future without childhood cancers.  June 15-17.  Register here: CAC2 Annual Summit Registration

Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

Take Action:

The 2025 Evan Lindberg & Erik Ludwinski College Scholarship Program is open to high school seniors who are survivors of a high-risk cancer or in treatment for a high-risk malignancy.  Students must be accepted into a 4-year undergraduate institution and demonstrate a need for financial assistance.  For information and to apply.

The Requester: Study team led by Dr. Brad Zebrack, University of Michigan, School of Social Work

Overview of the Opportunity:  The study seeks to understand more about how the world that teen and young adult lymphoma survivors live in affects the outcomes of their cancer treatment.

The Type of Request: Information sharing about an adolescent and young adult survivor study of health disparities.

The Ask:  Inform CAC2 Members about the study called Social Genomic Mechanisms of Health Disparities among Adolescent and Young Adult (AYA) Survivors of Hodgkin and Non-Hodgkin Lymphoma that is currently recruiting 18 – 39 year olds who have completed treatment for Hodgkin or Non-Hodgkin Lymphoma and are within 3 years since the end of treatment. Distribute the informational flyer within members’ networks.

Supporting Documentation:

The study has two primary goals:

  • Help develop approaches that improve the mental and physical quality of life for patients and survivors
  • Help create more effective treatment and better survivorship care for young adult cancer patients

Informational Flyer for distribution: http://www.cac2.org/wp-content/uploads/2025/03/Adolescent_Young_Adult_Survivor_Study.pdf

Website: https://aftercancergenomics.org

3-minute video explaining the study: https://www.youtube.com/watch?app=desktop&v=xDlnWKvtkuU&feature=youtu.be

 


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