CAC2 Childhood Cancer Community News Digest (August 21-27)

August 28, 2023 Community News, News Digest

Assorted News from the Last Week:

Despite major advances in cancer research, we collectively fall short in bringing innovative medicines to children with cancer.  A new proposal defines a business model to incentivize investors, private companies and public organizations to invest in drug development for paediatric cancers.

 

Use of homoharringtonine (HHT) may result in improved responses among patients with pediatric acute myeloid leukemia (AML) compared with etoposide-based induction therapy, according to findings from a study published in the Journal of Clinical Oncology.

Researchers at Texas A&M University announced a project to explore the use of 3D printing technology to produce customized pharmaceutics for pediatric patients.

The challenge of treating childhood brain cancers: navigating the maze of pediatric neuro-oncology bolstered by new molecular insights.

The National Comprehensive Cancer Network® today announced the publication of NCCN Guidelines for Patients®: Hodgkin Lymphoma in Children.

Upcoming Webinars, Online Opportunities, and Meetings:

Triage Cancer will offer a webinar on Medicare 101 on September 13 at 1:00 ET about Learn about the different “Parts” of Medicare, supplemental plans, decisions to make during open enrollment, and how it works with other insurance. We’ll close with a hands-on workshop to compare Medicare plans using Triage Cancer’s Medicare Options Comparison Worksheet..  Learn more and register.

Zoefia Alexandria Green Heart Gala, beautiful night of elegance and celebration to raise funds and awareness for Childhood Cancer/ Brain Cancer, September 15 at 7:00 pm ET.  Learn more and register.

The co-chairs of the Congressional Childhood Cancer Caucus will host the 14th Annual Childhood Cancer Summit on Thursday, September 21, 2023 in Washington, D.C.  Everyone is invited.  All RSVPs should be directed to McKayla Montgomery at .

Registration for CureFest 2023 is now open! Register today at:  www.curefestusa.org

MyPART will partner with the Life Raft Group to hold the NIH Pediatric and Wild-Type GIST Clinicat the NIH Clinical Center in Bethesda, MD. The clinic brings patients and families together with expert clinicians and researchers. To learn more about the upcoming clinic, please email BJ Thomas, RN at .

Register for the 55th SIOP in Ottawa, Canada on October 11-14. Experience 4 outstanding days of cutting-edge science, engaging debates, and networking with world-renowned experts.  Learn more and register.

Join top scientific experts, clinicians, researchers, NCI, childhood cancer foundations and advocates, agency officials, and many more for the Inaugural Childhood Cancer Prevention Symposium.  This ground breaking meeting will take place at Children’s National Research & Innovation Campus in Washington, DC on October 25-26th, 2023.  (Registration and meeting details forthcoming shortly).

Recent Recordings:

Jordan Hansford, MD, clinical lead, Neuro-Oncology Group, Royal Children’s Hospital Melbourne, discusses the phase 2 FIREFLY-1 trial (NCT04775485), which is investigating the pan-RAF inhibitor tovorafenib (DAY101) in children and young adults patients with low-grade glioma.

Take Action:

Pediatric Cancer legislation needs your support.  Learn more about how to support the Gabriella Miller Kids First Research Act 2.0, the Sawyer Finn ACT, Comprehensive Cancer Survivor Act, Accelerating Kids’ Access to Care Act,and the Give Kids a Chance Act.

Submit your child’s photo for the CureFest Tribute Wall.

To help spread the word about the Childhood Cancer Data Initiative (CCDI), the National Cancer Institute has created a communications toolkit with a CCDI overview flyer, a one-pager with frequently asked questions about the CCDI Data Ecosystem, and sample social media posts and graphics.  Access the toolkit, and feel free to reference, copy, and use its content for inspiration.

An invitation from CAC2 Member Mark Levine: “As I continue to try and raise awareness in the battle against Pediatric Cancer I want to once again thank all of you who have joined my HELP AND HOPE HAPPEN HERE Pediatric Cancer Facebook Group. . . . if any of you would like to come on to my show or know of someone who you think might want to share their story then please let me know. . . . you can email me at . I am also on Instagram and my “handle” ( if that is what you call it) is mark.levine.1654

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