CAC2 Childhood Cancer Community News Digest (August 5-11)

CCDI Federated Data: Enhancing Data Discoverability (Virtual Presentation), August 13, 2024, 1:00 p.m. – 2:00 p.m. ET.

Day One Biopharmaceuticals invites you to the Day One Advocacy Community Meeting, a semi-annual webinar hosted by Day One to foster communication and information-sharing with pediatric cancer advocates. Day One Chief Medical Officer Elly Barry, MD, MMSc, will review the current pipeline of clinical and pre-clinical programs for pediatric cancer and Vice President of Patient Advocacy Christa Kerkorian will review the framework for multistakeholder collaboration detailed in the recently published white paper,  Advancing Pediatric Cancer Research and Drug Development Through Multistakeholder Collaboration. Click here to Register.

Lori Krause will lead Healing Hearts Wellness Workshops once a month on Wednesdays from 7- 8PM ET on August 28th. Click here for more information and to register.

Join runners and walker on September 8th for the The Great Gold Rush Race 6.0  5K run/3K walk and Family Festival at Lake Central High School! Click here for more information and to register.

Join MIB Agents in Making It Better through TURBO, the Tumor Review Board for Osteosarcoma (for clinicians only).  Click here for more information and to register.

The BrainStorm Summit for pediatric brain tumors will take place at the Mayflower Hotel September 19-21. Click here for more information and to register.

The 15th Annual Congressional Childhood Cancer Summit takes place September 19th on Capitol Hill, from 9:45 AM – 12:00 PM. Register to attend here.

Y’all are invited to “Cocktails for A Cause: You’re Wanted!” hosted by Gold Rush Cure on September 26.  Click here for more information and to register.

This year on September 30 will be the Austin Hatcher Foundation’s 15th annual Celebration of Life and Hope.  Click here for more information and to register.

The CureSearch annual Pediatric Early Development Symposium (PEDS) brings together key experts and stakeholders to address timely challenges and opportunities in pediatric cancer drug development on October 9 and 10.  Click here for more information and to register.

FDA Oncology Center of Excellence (OCE) is hosting an in-person and virtual OCE Pediatric Advocacy Forum on October 15.  Click here for more information and to register.

56^th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Past Recordings:

Tovorafenib for low-grade gliomas shows decreased tumor growth in phase 2 study.

Take Action:

The FDA and CTTI announced the call for applications for new members of the Patient Engagement Collaborative (PEC). The PEC is an ongoing, shared forum in which the patient community (PEC members), FDA, and CTTI discuss a variety of topics such as improving communication, education, and patient engagement related to medical product regulation.

NIH recently announced a Request for Information to gather community input on additional proposed actions to accelerate the career transition of postdoc scholars into thriving biomedical research careers. Please note that feedback will be accepted electronically until October 23, 2024.  See the Open Mike Blog for additional information.

Try out the monthly donation platform dedicated to childhood cancer that helps nonprofits and warrior-parents team up to raise money for research, family support, and advocacy offered at no charge by Hello Cure. 

CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details.  Click here for the IRB Approval document.