CAC2 Childhood Cancer Community News Digest (December 18-January 7)

Join MIB Agents in Making It Better through TURBO, the Tumor Review Board for Osteosarcoma at 5:00 pm ET on January 10. This virtual opportunity is designed to foster collaboration and knowledge-sharing among multidisciplinary experts globally.  Learn more here.

Join CCLG Research Talks on January 17 at 2:oo pm ET to hear “How can leukaemia treatment affect a child’s brain?”  For information and to register.

MIB Agents osTEAo podcast drops January 18.  For information and links.

Free webinar hosted by NCI:  “Navigating St. Jude’s PeCan v2 & Survivorship Data Sharing Tools” on January 23 at 1:00–2:00 p.m. ET.  Register here.

Dr. Andy Livingston will offer an MIBAgents webinar on OsteoBites to discuss the background and scientific rationale for combining immunotherapy with cabozantinib in teens and young adults with osteosarcoma and provide information about the ongoing TACOS study at 3:00 ET on January 25.    For information and to register.

Webinar on the Individual Education Program (IEP) document, its development, the breakdown of each section and understand how the document will support a student, 6:00-8:30 pm ET, January 31.  For information and to register.

ACCELERATE Annual Conference 2024 on February 8 & 9 in Brussels. Learn about the most recent successes in paediatric oncology drug development worldwide, the latest regulatory updates in Europe and North America and more.  For information and to register.

Austin Hatcher Foundation Bubbles of Fun 5K, 10K, and 1-Mile Fun Run, February 10 at Tennessee Riverpark.  For information and to register.

Alliance for Childhood Cancer has announce that Action Days 2024 will take place in Washington, DC from February 13-14, 2024. Registration will open in mid-December.  Click for information.

FDA’s Rare Disease Day will be on Friday, March 1, 2024, and registration is open for this virtual event. This year’s Rare Disease Day is dedicated to patients and health care professionals.

The 2024 ASCO-Sponsored Patient Advocacy Booth will provide 50 complimentary exhibits to patient advocacy organizations at the ASCO Annual Meeting. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Applications will be accepted between Monday, February 5 at 10:00 AM (ET) and Monday, February 12 at 5:00 PM (ET). Once the application period opens, the link to the application will be available on Cancer.Net.

The Childhood Cancer Data Initiative (CCDI) is seeking input to assist NCI in using electronic health record (EHR) data to accelerate progress in childhood cancer research. You are invited to respond to our latest Request for Information (RFI) to share your capabilities in automated EHR data entry and extraction. Submissions will be accepted until February 29, 2024.  Submit a response to share your tools, clinical workflows, and approaches for entering and extracting EHR data in a structured format. You may also respond with insights on how existing tools for data capturing, extraction, and transformation in adult cancer research can be used to support childhood and rare cancer research. Feel free to reach out to Subhashini Jagu with questions.

CAC2 Member Arms Wide Open Childhood Cancer Foundation recently announced Thrive, a new mental wellness initiative that aims to support the emotional well-being of childhood cancer survivors, siblings, and parents. Learn more and take advantage.

Triage Cancer launched Triage Health, a program that provides free education on the legal and practical issues related to navigating a chronic or serious medical condition. Learn more.

The White House asks for our community to stay tuned to www.whitehouse.gov/cancermoonshot for updates – and stay involved by sharing new actions and impactful stories and ideas to inspire others and help end cancer as we know it.