CAC2 Childhood Cancer Community News Digest (February 17-23)

February 24, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

The Childhood Cancer Data Initiative (CCDI) is piloting data federation with Kids First Data Resource Center, the Pediatric Cancer Data Commons, St. Jude Cloud, and the Treehouse Childhood Cancer Data Initiative. These resources provide information about genomic, clinical, imaging, and biospecimen data in these data sets. This list will expand as more organizations implement CCDI’s data federation API.

How genetics shape blood proteins during development from childhood to adolescence.

Penn State’s THON sets record, raises over $17 million for pediatric cancer research.

Allogeneic approach unlocks CAR T cell benefits in solid tumors.

Using the microscopic structures found on the wings of the Morpho butterfly, researchers have developed a simple and inexpensive way to analyze cancer biopsy samples that could make cancer diagnosis faster, more accurate and more accessible worldwide.

A woman diagnosed with neuroblastoma in childhood has remained in remission for more than 18 years after being treated with an engineered CAR T-cell therapy at 4 years of age, according to follow-up of a phase I trial.

Childhood cancer in Malaysia: Multidisciplinary care brings new hope.

UT MD Anderson and Texas Children’s Hospital announce joint venture.

Why are so many young adults getting cancer?

Upcoming Webinars, Online Opportunities, and Meetings:

Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

Pediatric Brain Tumor Foundation will host a webinar with PBTF Family Support Manager Jenn Kelley and Nationwide Children’s Hospital Psychologist Dr. Danielle Chambers as they share insights and personal stories to help families navigate the fear and uncertainty that comes with the numerous medical scans children face during their pediatric brain tumor journey, February 25, 1:00 pm ET.  Click here for more information and to register.

Courageous Parents Network we are pleased to host discussing Dr. Monica Lemmon & Parents on Decision-Making in the NICU, February 27, 8:00 pm ET.  Click here for more information and to register.

Recent Recordings:

“Exploring further discoveries from clinical research” hosted by Cancer Research UK.

Take Action:

Reps. Trahan and Miller-Meeks re-introduced the Accelerating Kids’ Access to Care Act this week and Congressman Michael McCaul reintroduced the Give Kids a Chance Act of 2025 last week.  Together these two bills contain the Childhood Cancer legislative package that we will be supporting at Action Days this week.  For those who won’t be in DC on Thursday and Friday, we will publish follow up actions in next week’s News Digest.

Researchers from Michigan strongly urge you to reach out to your US House Representatives and US Senators regarding the attack on the NIH and US academic research institutions.  The specific new policy of reducing NIH grant indirect funds to 15% is economically disastrous for the country.  It is super important to advocate to your elected officials to oppose this policy, and to work to reverse it.

 

SUBSCRIBE

Sign up to receive a copy of CAC2's free childhood cancer news digest in your inbox each week.

Name(Required)
Email(Required)
This field is for validation purposes and should be left unchanged.

Archives

Enquire now

Give us a call or fill in the form below and we will contact you. We endeavor to answer all inquiries within 24 hours on business days.