CAC2 Childhood Cancer Community News Digest (January 13-19)

January 20, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

The U.S. Food and Drug Administration (FDA) approved FoundationOne®CDx as a companion diagnostic for Supporting Organization Member Day One Biopharmaceuticals’ OJEMDA, a type II RAF inhibitor, for the treatment of patients six months of age and older with relapsed or refractory pediatric low-grade glioma (pLGG) harboring a BRAF fusion or rearrangement.

Pediatric patients with cancer who have obesity at the time of diagnosis may face an elevated risk of mortality.

About 30% of adolescents and young adults with cancer who wanted to die at home did not do so.

Cancer burden is shifting from men to women and old to young.

Researchers uncover what drives aggressive bone cancer.

Childhood cancer survivors have double the risk of melanoma as adults: Radiation exposure, type and cumulative dose of chemotherapy drive melanoma risk.

Drug-discovery platform for high-risk leukemias in children shows promising results.

Children with congenital heart defects found to have poorer survival following cancer diagnosis.

In a case series of five children with treatment-refractory neuroblastoma, it was feasible to manufacture and administer donor-derived GD2-specific CAR T cells and clinical responses were seen in four patients.

Upcoming Webinars, Online Opportunities, and Meetings:

During the CAC2 January webinar “Fit for Filing ” on January 30 at noon ET, presenters will explore how research funders can encourage our academic and industry partners to design and conduct clinical trials that produce data suitable for regulatory filing.

Ohio’s 4th Annual Childhood Cancer Summit is a free, virtual event is open to all and will be held on February 4, 2025 between 9-4:30pm ET. Click here for more information and to register.

ACCELERATE Multi-stakeholder Conference “A Decade of Impact – and Beyond” on February 6th & 7th in Brussels Belgium. In-person and virtual registration available.  Click here for more information and to register.

The 2nd Childhood Cancer Prevention Symposium will be held in Houston, TX, at Texas Children’s Hospital, February 10-13, 2025. Click here for more information and to register.

Community webinar exploring children’s and young people’s cancers will explore how clinical research and how clinical trials to deepen our understanding of cancer biology and treatment for children’s and young people’s cancers, February 12, 10:00 ET.  Click here for more information and to register.

Join Gray for Glioblastoma and After Hours for Valentine’s evening at La Maison Française of the French Embassy to support brain cancer research on February 14, from 7:00-11:00 ET.  Click here for more information to register.

Recent Recordings:

“Are we ready for an AI oncologist?” | Pallavi Tiwari | TEDxOshkosh

Take Action:

The 2025 ASCO-Sponsored Patient Advocacy Booth will provide 50 complimentary exhibits to patient advocacy organizations at the ASCO Annual Meeting. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Applications will be accepted between Monday, January 20 at 10:00 AM (ET) and Monday, February 3 at 5:00 PM (ET). Once the application period opens, the link to the application will be available on Cancer.Net.

Last year, Congress left kids with cancer behind. Today, 64 CAC2 member organizations joined over a dozen other organizations urging the new Congress to make them the first order of business. Children with cancer have waited long enough–it’s time to finish the job.  CAC2 Letter to Congressional Leadership. Please share to show your support by sharing on social media! #CancelChildhoodCancer #KidsDeserveBetter

CAC2 Innovation Council Recommendation: The Dot Method

Overview of the Opportunity:  The Dot Method is an interactive workbook to teach kids about cancer.

The Requester: CAC2 Individual Member Kelsey Mora, PLLC (Dual Certified Child Life Specialist and Therapist and Author of The Dot Method)

The Type of Request: Sharing information about a product for purchase (interactive workbook, available singly from Amazon or in discounted bulk order) in support of a child with cancer and other children in the child’s family and community.

The Ask:  The Dot Method was published in January 2024. The author and creator seeks to build awareness and access for the resource as a tool to support kids impacted by pediatric cancer.

Supporting Documentation: Using simple visuals, honest language, and a workbook format, The Dot Method helps untangle medical jargon and unfamiliar scenarios and present them in a way that makes sense to children and young adults. The workbook allows for different types of cancers, treatments, and outcomes to be expressed.

The workbook written by a dual-certified child life specialist and licensed clinical professional counselor includes: a how to guide for caregivers and a glossary of child-friendly definitions of cancer terms. It teaches about cancer cells, treatment, side effects, as well as helps children identify feelings, their support system, and coping strategies.

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