CAC2 Childhood Cancer Community News Digest (January 20-26)

January 27, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

A large number of CAC2 members contributed to the recently published conclusions from the 2024 paediatric strategy forum for medicinal product development in diffuse midline gliomas: to achieve progress: i) drug discovery; ii) new multi-modality, efficient, collaborative, pre-clinical approaches, possibly including artificial intelligence and, iii) efficient clinical trial designs fit for regulatory purposes are required.

The FDA approved treosulfan (Grafapex) with fludarabine as a preparative regimen for allogeneic hematopoietic stem cell transplantation in patients ages 1 year and older with acute myeloid leukemia (AML) or myelodysplastic syndrome (MDS).

Researchers have determined how children’s immune systems react to different kinds of cancer depending on their age. The study reveals significant differences between the immune response of children and adults, and has the potential to lead to new tailored treatments for children with cancer.

Research looked at how cancers arise in children who are predisposed to developing the childhood kidney cancer, Wilms tumor, which could help anticipate the development of tumors before they fully form.

Metronomic chemotherapy: A promising approach for pediatric neuroblastoma.

Targeting potassium channel shows promise for treating brain tumors in children.

Upcoming Webinars, Online Opportunities, and Meetings:

During the CAC2 January webinar “Fit for Filing ” on January 30 at noon ET, presenters will explore how research funders can encourage our academic and industry partners to design and conduct clinical trials that produce data suitable for regulatory filing.

Cheerful Hearts hosts online game time for children ages 6 through 14 years old every Sunday at 4:00 pm-4:30 EST. Click here for more information and to register.

Ohio’s 4th Annual Childhood Cancer Summit is a free, virtual event is open to all and will be held on February 4, 2025 between 9-4:30pm ET. Click here for more information and to register.

ACCELERATE Multi-stakeholder Conference “A Decade of Impact – and Beyond” on February 6th & 7th in Brussels Belgium. In-person and virtual registration available.  Click here for more information and to register.

The 2nd Childhood Cancer Prevention Symposium will be held in Houston, TX, at Texas Children’s Hospital, February 10-13, 2025. Click here for more information and to register.

Community webinar exploring children’s and young people’s cancers will explore how clinical research and how clinical trials to deepen our understanding of cancer biology and treatment for children’s and young people’s cancers, February 12, 10:00 ET.  Click here for more information and to register.

Join Gray for Glioblastoma and After Hours for Valentine’s evening at La Maison Française of the French Embassy to support brain cancer research on February 14, from 7:00-11:00 ET.  Click here for more information to register.

Recent Recordings:

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

Take Action:

The 2025 ASCO-Sponsored Patient Advocacy Booth will provide 50 complimentary exhibits to patient advocacy organizations at the ASCO Annual Meeting. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Applications will be accepted between Monday, January 20 at 10:00 AM (ET) and Monday, February 3 at 5:00 PM (ET). Once the application period opens, the link to the application will be available on Cancer.Net.

The Grayson Foundation and The American Childhood Cancer Organization are partnering to bring a Childhood Cancer Awareness specialty license plate to Tennessee residents.  While Tennessee has several children’s hospital license plates, it does not have a general childhood cancer awareness license plate with a gold ribbon.  This is a simple way to honor all the young warriors across the state who are in treatment, in remission, or in Heaven.  The state requires 1,000 preorders before they will begin to produce and issue the new tag.  Will you please help us by sharing this information with your contacts in Tennessee?  If we do not reach 1,000 preorders by 6/30/25, the tag won’t happen.  The link to preorder a license tag is: https://s.acco.org/Reserve-TN-Plate

Last year, Congress left kids with cancer behind. Today, 64 CAC2 member organizations joined over a dozen other organizations urging the new Congress to make them the first order of business. Children with cancer have waited long enough–it’s time to finish the job.  CAC2 Letter to Congressional Leadership. Please share to show your support by sharing on social media! #CancelChildhoodCancer #KidsDeserveBetter

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