CAC2 Childhood Cancer Community News Digest (January 6-12)

January 13, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

Pope Francis tells pediatric cancer patients they are ‘witnesses of hope.’

Unraveling the relationship between stress exposure and childhood anxiety: Considering accumulation, impact, and type in the first five years of life.

New symptom reporting tool improves quality of life for children with cancer.

Draft guidance from the FDA and Office for Human Research Protections offers draft guidance for incorporating tissue biopsies into clinical trials.

Bone mineral density deficits prevalent among childhood cancer survivors, but modifiable risk factors suggest there are targets for intervention.

Childhood cancer genome study reveals hidden variants.

Transplant of frozen testicular tissue after chemotherapy during childhood provides hope for fertility restoration.

Upcoming Webinars, Online Opportunities, and Meetings:

Navigating the Family: Siblings presentation:  Many siblings serve as caregivers for their brothers and sisters with mental health and other support needs later in life. This presentation which will share information on common sibling dynamics and feature a panel of true experts: adult siblings reflecting back on their experiences growing up with a sibling with support needs will be held on January 15  at 2:00 ET. Click here for more information and to register.

Ohio’s 4th Annual Childhood Cancer Summit is a free, virtual event is open to all and will be held on February 4, 2025 between 9-4:30pm ET. Click here for more information and to register.

ACCELERATE Multi-stakeholder Conference “A Decade of Impact – and Beyond” on February 6th & 7th in Brussels Belgium. In-person and virtual registration available.  Click here for more information and to register.

The 2nd Childhood Cancer Prevention Symposium will be held in Houston, TX, at Texas Children’s Hospital, February 10-13, 2025. Click here for more information and to register.

Community webinar exploring children’s and young people’s cancers will explore how clinical research and how clinical trials to deepen our understanding of cancer biology and treatment for children’s and young people’s cancers, February 12, 10:00 ET.  Click here for more information and to register.

Join Gray for Glioblastoma and After Hours for Valentine’s evening at La Maison Française of the French Embassy to support brain cancer research on February 14, from 7:00-11:00 ET.  Click here for more information to register.

Recent Recordings:

CAC2 Member Ann Graham (MIB Agents) speaks about adolescent and young adult (AYA) patients with cancer, who find themselves between pediatric and adult patients, often face concerns and issues unique to their age group.

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts).  Access this weeks podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

Take Action:

Last year, Congress left kids with cancer behind. Today, 64 CAC2 member organizations joined over a dozen other organizations urging the new Congress to make them the first order of business. Children with cancer have waited long enough–it’s time to finish the job.  CAC2 Letter to Congressional Leadership. Please share to show your support by sharing on social media! #CancelChildhoodCancer #KidsDeserveBetter

CAC2 Innovation Council Recommendation: The Dot Method

Overview of the Opportunity:  The Dot Method is an interactive workbook to teach kids about cancer.

The Requester: CAC2 Individual Member Kelsey Mora, PLLC (Dual Certified Child Life Specialist and Therapist and Author of The Dot Method)

The Type of Request: Sharing information about a product for purchase (interactive workbook, available singly from Amazon or in discounted bulk order) in support of a child with cancer and other children in the child’s family and community.

The Ask:  The Dot Method was published in January 2024. The author and creator seeks to build awareness and access for the resource as a tool to support kids impacted by pediatric cancer.

Supporting Documentation: Using simple visuals, honest language, and a workbook format, The Dot Method helps untangle medical jargon and unfamiliar scenarios and present them in a way that makes sense to children and young adults. The workbook allows for different types of cancers, treatments, and outcomes to be expressed.

The workbook written by a dual-certified child life specialist and licensed clinical professional counselor includes: a how to guide for caregivers and a glossary of child-friendly definitions of cancer terms. It teaches about cancer cells, treatment, side effects, as well as helps children identify feelings, their support system, and coping strategies.

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