CAC2 Childhood Cancer Community News Digest (July 1-7)

July 8, 2024 Community News, News Digest

Assorted News from the Last Week:

Building a case for incorporating patient advocates throughout the research continuum in pediatric oncology.

The NCI Council of Research Advocates met virtually on June 26 and heard the latest legislative report, with updates on appropriations, cancer-related legislation, and other ways that NCI is engaging and advocating.

An article in support of the Creating Hope Reauthorization Act: “The rare pediatric disease voucher program creates new treatments. I have new data to prove it.”

Benefits for children with suspected cancer from routine whole-genome sequencing.

Upcoming Webinars, Online Opportunities, and Meetings:

56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Past Recordings

National Council of Research Advocates met on June 26. The videocast and speaker slides can be found here.

Take Action:

Try out the monthly donation platform dedicated to childhood cancer that helps nonprofits and warrior-parents team up to raise money for research, family support, and advocacy offered at no charge by Hello Cure. 

CAC2 Member the Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.

CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details.  Click here for the IRB Approval document.

CAC2 Innovation Council Recommendation: ArtVsCancer

Overview of the Opportunity: ArtVsCancer is a public Facebook group where AI artists create free custom art for childhood cancer patients and other children with life threatening diseases.

The Requester: Arthur van Vugt, Dutch childhood psychologist

The Type of Request: Information Sharing

The Ask: Inform parents about the existence of the group

Supporting Documentation:

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