CAC2 Childhood Cancer Community News Digest (July 22-28)

Lori Krause will lead Healing Hearts Wellness Workshops once a month on Wednesdays from 7- 8PM ET on July 31st and August 28th. Click here for more information and to register.

Rocky Mountain Vintage Racing is pleased to announce a 2-year festival series culminating in 2023 with the FV 60th anniversary. RMVR’s Race Against Kids’ Cancer (RAKC), will be at High Plains Raceway August 2-4, 2024.  Click here for more information and to register.

Join MIB Agents in Making It Better through TURBO, the Tumor Review Board for Osteosarcoma (for clinicians only).  Click here for more information and to register.

The BrainStorm Summit for pediatric brain tumors will take place at the Mayflower Hotel September 19-21. Click here for more information and to register.

Y’all are invited to “Cocktails for A Cause: You’re Wanted!” hosted by Gold Rush Cure on September 26.  Click here for more information and to register.

This year on September 30 will be the Austin Hatcher Foundation’s 15th annual Celebration of Life and Hope.  Click here for more information and to register.

The CureSearch annual Pediatric Early Development Symposium (PEDS) brings together key experts and stakeholders to address timely challenges and opportunities in pediatric cancer drug development on October 9 and 10.  Click here for more information and to register.

FDA Oncology Center of Excellence (OCE) is hosting an in-person and virtual OCE Pediatric Advocacy Forum on October 15.  Click here for more information and to register.

56^th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Past Recordings

Charles Limoli presented on the use of FLASH radiotherapy for quicker treatment delivery that spares normal tissue and improves outcomes at the International Symposium on Pediatric Neuro-Oncology.

To address this year’s theme: “Childhood Cancer Stigma and Communications,”  Childhood Cancer International held two open webinars that tackled different issues related to childhood cancer and survivorship.  Two CAC2 members, Board Member and survivor Mariah Forster Olson (Neuroblastoma Children’s Cancer Society) and Anna Sorkin (Individual Member)  served as panelists.

Take Action:

The FDA and CTTI announced the call for applications for new members of the Patient Engagement Collaborative (PEC). The PEC is an ongoing, shared forum in which the patient community (PEC members), FDA, and CTTI discuss a variety of topics such as improving communication, education, and patient engagement related to medical product regulation.

Try out the monthly donation platform dedicated to childhood cancer that helps nonprofits and warrior-parents team up to raise money for research, family support, and advocacy offered at no charge by Hello Cure. 

CAC2 Member the Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.

CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details.  Click here for the IRB Approval document.