CAC2 Childhood Cancer Community News Digest (May 8-14)

May 15, 2023 Community News, News Digest

Assorted News from the Last Week:

Childhood cancer survivors have increased rates of late, major surgeries—Magnitude of the risk is “striking.”

As the US faces a near-record number of drug shortages, cancer treatments are among the hardest hit.

The Pediatric Cancer Dependencies Accelerator project aims to identify and exploit genetic vulnerabilities in pediatric cancers to develop better treatments.

Lenalidomide showed activity in children with pilocytic astrocytomas and optic pathway gliomas who did not respond to initial therapy.

Pediatric and young adult patients with T-cell acute lymphoblastic leukemia (T-ALL) who did not respond to induction therapy had poorer outcomes vs those with induction response. “The lack of a unifying genetic driver suggests alternative approaches, particularly using immunotherapy, are urgently needed.”

The investigational CAR T-cell therapy GD2-CART01 showed preliminary antitumor activity and safety in pediatric patients with relapsed or refractory high-risk neuroblastoma, according to data from a phase 1/2 trial.

The Children’s Brain Tumor Network (CBTN) and the Pacific Pediatric Neuro-Oncology Consortium (PNOC) are proud to announce the release of a special issue of the academic journal, Neoplasia, entirely dedicated to the latest research discoveries made possible by these two global organizations.

Associations with maternal migraines were observed for several childhood cancers, including neuronal tumors.

Courageous cancer parents who worked to expose fake charity.

Upcoming Webinars, Online Opportunities, and Meetings:

Triage Cancer will host a free webinar at 1:00 pm ET on Wednesday May 17.  The speakers will discuss COBRA, the medical marketplace, Medicare, Medicaid, and much more. Learn how to compare options to find an affordable plan that meets individual needs.  Click here for more information and to register.

NCI’s Office of Advocacy Relations would like to invite you to the upcoming webinar, Introduction to the NCI Surveillance, Epidemiology, and End Results (SEER) Program, to be held May 25 from 1pm – 2pm ET.  Click here to join the meeting.

Registration has opened for the CAC2 2023 Annual Summit, presented by Day One Biopharmaceuticals! This year’s conference takes place from noon, Monday, June 19 through 2:00 pm, Wednesday, June 21, 2023, in Atlanta, GA, at Children’s Healthcare of Atlanta Emory University.  Click here for more information and to register.

MIB Agents Osteosarcoma Alliance FACTOR 2023 Conference brings together the leading osteosarcoma researchers and clinicians, along with patient families and OsteoWarriors (survivors, patients and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  Click here for more information.

Give Kids the World Summer Road Trip! From June 17-26, GKTW visit 10 amusement parks and offer a day of fun for our incredible Alumni families for free.  Summer Road Trip info can be found here:  https://www.gktw.org/roadtrip/.

Recordings of Recent Past Events:

Matthew Ehrhardt, MD, MS, explains the association of modifiable health conditions, as well as social determinants of health, in relation to late mortality in survivors of childhood cancer.

From the Caregiver Wellbeing Special Interest Group (SIG) of APA’s Society of Pediatric Psychology:  Ask the Experts: Navigating Communication with Newly Bereaved Caregivers.

Take Action:

Precious Jules Childhood Cancer Foundation has opened its 2023 Pediatric Oncology Grant for $50,000 grant.

The International Agency for Research on Cancer (IARC) and partner institutions are now accepting applications for an online course on the registration of cancer in children.  Click here for more information.
The U.S. Food and Drug Administration’s Center For Devices and Radiological Health (CDRH is searching for applicants for vacancies for Voting Members for the Patient Engagement Advisory Committee (PEAC) and 2) finding diverse Special Government Employees (SGEs) with specific specialties.  Click here for more information.

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