CAC2 Childhood Cancer Community News Digest (May 9-22)

Assorted News from Last Week:

The Coalition Against Childhood Cancer is pleased to announce the 2022 Annual Summit hosted by Children’s Hospital of Philadelphia and presented by Day One Biopharmaceuticals.  This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing work of our members who are working for a future without childhood cancers.

On May 20, 2022, the Food and Drug Administration approved azacitidine (Vidaza, Celgene Corp.) for pediatric patients with newly diagnosed juvenile myelomonocytic leukemia (JMML).

Pediatric cancer survivorship lessons 42 years after cancer.

An algorithm that can speed up by years the ability to identify from among thousands of possibilities, two or more drugs that work synergistically against a problem like cancer or a viral infection has been developed by bioinformatics experts

Upcoming Webinars, Online Opportunities, and Meetings:

The U.S. Food and Drug Administration and the Duke-Margolis Center for Health Policy will convene a virtual public workshop on May 24 and 25, 2022, to present best practices and use cases for successfully bringing forward evidence generated through translational science for regulatory submissions.

The 20^th International Symposium on Pediatric Neuro-Oncology, ISPNO 2022 from 12 – 15 June 2022, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) in Hamburg, Germany, from 11 – 12 June 2022.  Registration link.

Leukemia & Lymphoma Society will host a free virtual education program for families and caregivers of pediatric blood cancer patients on June 15 at 5:00 CDT. Participants will learn about immunotherapy options for children with Leukemia and Lymphoma. Participants will gain a better understanding about some of the most recent innovations in treating the most common leukemias and lymphomas of childhood. Attendees will be introduced to the field of immunotherapy in cancer treatment and gain insight into how novel therapies are conceived, tested and approved.  Registration link.

Recordings of Recent Past Events:

Danielle Riberio from Great.com interviewed Coalition Against Childhood Cancer as part of their ‘Great.com Talks With…’ podcast.

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

• Katie Holcomb (Ryan’s Case for Smiles)

Take Action:

Childhood Cancer International has a call for real life stories to focus attention on the childhood cancer community. “We will be using actual stories from real people worldwide, including: patients and their families, survivors, bereaved parents and health providers. For this, we need your help. We want to highlight what CCImembers organizations are doing in each region and the impact they are having. Our goal is to portray testimonials from all around the globe, so your inputs are crucial.”  This is an open invitation.  We want to expand your voice and to give visibility to everyone.  Submit stories here.