CAC2 Childhood Cancer Community News Digest (November 13-19)

November 20, 2023 Community News, News Digest

Assorted News from the Last Week:

The Childhood Cancer Data Initiative (CCDI) awarded eight administrative supplements to NCI-Designated Cancer Centers to investigate how data in the CCDI Data Ecosystem can be used to accelerate progress in childhood cancer.

A mission to rescue cancer-stricken children from the violence in Gaza has involved multiple countries and last-minute connections in the chaos of war.

CCDI also released a new resource in October—the CCDI Hub Explore Dashboard. This enables users to discover and connect childhood cancer data on over 4,100 participants from eight different studies, with plans to add studies as data are released. Explore demographics, diagnoses, samples, and more with available filters and visualize data with tables and charts. Visit the dashboard.

Drug approval times around the world.

In recognition of their leadership in combatting childhood cancer – the country’s leading cause of death by disease among children – Steven Joffe, MD, MPH, and Vickie Buenger, PhD, received special awards from CAC2 Member Children’s Cancer Cause at a reception held in New York City on November 2, 2023.

A study of pediatric brain tumor survivors (n = 16, 34%) showed them endorsing fewer than 10 social interactions over the course of a typical school week, and almost half of parents (48.9%) reporting that their child participates in zero social activities outside of school during a typical week.

Cancer death rates dropped among children in the U.S. from 2001 to 2021. The decline was strongest after 2011 for white and younger kids.

President Biden announced his intention to appoint Dr. W. Kimryn Rathmell, an accomplished physician-scientist and internationally recognized expert in kidney cancer, as the next NCI director. Dr. Rathmell currently leads the Vanderbilt University Medical Center as Physician-in-Chief and Chair of the Department of Medicine.

Upcoming Webinars, Online Opportunities, and Meetings:

Free webinar hosted by NCI:  “Navigating St. Jude’s PeCan v2 & Survivorship Data Sharing Tools” on January 23 at 1:00–2:00 p.m. ET.  Register here.

Recent Recordings:

October’s CCDI webinar provided a demonstration of two other CCDI resources: NCCR*Explorer and SEER*Stat. The presentation showed real-world uses for the tools to help people understand how to apply their combined potential in research. Access a recording.

Take Action:

NCI is seeking input through a request for information about the CCDI Data Ecosystem. Fill out this survey to tell us how you use the CCDI Data Ecosystem, what types of childhood cancer data would advance your work, and what barriers you encounter when using and accessing data from the ecosystem. Responses are due November 30.

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