CAC2 Childhood Cancer Community News Digest (November 20-26)

November 27, 2023 Community News, News Digest

Assorted News from the Last Week:

World Health Organization (WHO) Foundation report on global childhood cancer

A collaboration of researchers has published successful results from a Phase II clinical trial for the treatment of BRAF mutated low-grade paediatric gliomas.

Treatment for pediatric leukemia involves intensive chemotherapy, which has severe side effects due to its non-specific mode of action. A team has now discovered a site in the DNA of cancer cells that is essential for leukemia cells to survive. Cancer cells in which the gene encoded at this site was modified experimentally died off. The gene locus thus constitutes a promising target for an alternative therapy in the future.

Children With Cancer UK and Cancer Research UK launched a collaborative research program to advance precision cancer care for pediatric patients.

According to Future Market Insights, the paediatric clinical trials market is expected to grow at a 5.3% annual pace between 2022 and 2032.

From Australia: Michelle Haber AM receives the 2023 Lifetime Achievement Award, in acknowledgement of her remarkable contributions to the fight against childhood cancer.

Upcoming Webinars, Online Opportunities, and Meetings:

Join Erinne Benedict, A Moment of Magic’s Mental Health Specialist, as she provides a space for community and support focused on navigating grief during the holiday season on November 29, at 7:00-8:00 pm ET. Learn more and register.

Free webinar hosted by NCI:  “Navigating St. Jude’s PeCan v2 & Survivorship Data Sharing Tools” on January 23 at 1:00–2:00 p.m. ET.  Register here.

Recent Recordings:

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

October’s CCDI webinar provided a demonstration of two other CCDI resources: NCCR*Explorer and SEER*Stat. The presentation showed real-world uses for the tools to help people understand how to apply their combined potential in research. Access a recording.

Take Action:

NCI is seeking input through a request for information about the CCDI Data Ecosystem. Fill out this survey to tell us how you use the CCDI Data Ecosystem, what types of childhood cancer data would advance your work, and what barriers you encounter when using and accessing data from the ecosystem. Responses are due November 30.

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