CAC2 Childhood Cancer Community News Digest (October 21-27)

October 28, 2024 Community News, News Digest

Assorted News from the Last Week:

Today, the Biden Cancer Moonshot announced a new private sector pilot program to maintain uninterrupted access to seven pre-selected critical pediatric cancer medications.

Year-end Advocacy readout: Three legislative initiatives for kids with cancer that have a strong possibility for passage in this Congress.

Alarmingly few childhood cancer survivors undergo recommended surveillance for late effects.

A Chineses randomized trial showed the a shorter regimen of three cycles of adjuvant chemotherapy was noninferior to a standard six-cycle regimen among patients with pathologically high-risk retinoblastoma.

The needs of families of pediatric cancer survivors: challenges and developments in psychosocial support services.

Fertility preservation in pediatric and young adult oncology: Navigating gonadotoxicity and treatment strategies.

Pediatric cancer treatment refusal: To report or not to report?

Dr. Audrey Evans, pediatric oncologist and founder of the Ronald McDonald House is the subject of new biopic “Audrey’s Children”

Upcoming Webinars, Online Opportunities, and Meetings:

The Food and Drug Administration (FDA) will hold a virtual Patient Engagement Advisory Committee (the Committee) meeting on Patient-Centered Informed Consent in Clinical Study on October 30 from 10:00-5:00 ET.  Click here for more information and to register.

Join the Ross K MacNeill Foundation for a special evening in support of Pediatric Brain Cancer research on Friday, November 1st at the Field Museum in Chicago.  Click here for information and tickets.

A live hour with dual Certified Child Life Specialist, Licensed Clinical Professional Counselor, and Author of The Dot Method, Kelsey Mora, focused on parenting strategies to improve communication, connection, and coping with children and teenagers. Click here for more information and to register.

Please attend the BORN GALA 2024, hosted by the Neev Kolte & Brave Ronil Foundation at the Blackhawk Museum in Danville, California  on November 17th, 2024.  Click here for more information and to register.

Take Action:

If you or someone you know resides in Kentucky, please contact Senator Rand Paul’s office to support H.R. 3391/S. 1624 – The Gabriella Miller Kids First Research Act 2.0 a crucial program that supports research into childhood cancer and structural birth defects. Please email Ellyn Miller directly at , and request a template letter to send to his office.

CAC2 Innovation Council Recommendation: “Introduction to Pediatric Cancer & Mental Health” Training Course

Overview of the Opportunity: “Introduction to Pediatric Cancer & Mental Health” training course is a comprehensive program designed for providers, professionals, and support systems seeking to enhance their understanding of the intersection between pediatric cancer and mental health.  CAC2 members are asked to share details about this specialized course (approved by The National Association of Social Work for 2.5 CE credits) with childhood cancer providers and professionals in their networks.

Supporting Documentation:
The course covers topics such as treatment experiences, mental health challenges, and support strategies for patients and families. CAC2 Members are eligible for a 30% discount on the $99 course price.
 

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