CAC2 Childhood Cancer Community News Digest (October 7-20)

October 21, 2024 Community News, News Digest

Assorted News from the Last Week:

Pediatric cancer medications are 90 percent more likely to go into shortage than other medications, reports say, and stay in shortage 30 percent longer on average.

The FDA has granted rare pediatric disease designation to galinpepimut-S (GPS) for the treatment of pediatric patients with acute myeloid leukemia (AML).

Survivors of childhood brain cancer are more likely to be held back in school.

A new cell therapy, targeting CD7 on leukaemia cells, gives a potentially effective treatment for patients with T-cell acute lymphoblastic leukaemia (T-ALL) who have exhausted all standard treatment options. Published in the medical journal Nature Medicine on 3 September 2024, the study highlights the effectiveness of a new chimeric antigen receptor (CAR) T-cell therapy.

Childhood cancer survivors experience fear of recurrence even decades later.

Dip in cancer-related deaths among younger adults linked to ACA’s dependent coverage.

Study identifies genetic factors crucial in acute myeloid leukemia survival for Black patients.

Study demonstrates that cellular subtypes within DMGs harbor distinct metabolic vulnerabilities that can be uniquely and selectively targeted for therapeutic gain.

Gene therapy shows long-term benefit for patients with a rare pediatric brain disease.

Immunotherapy boosts survival of advanced Hodgkin lymphoma in clinical trial.

Upcoming Webinars, Online Opportunities, and Meetings:

The Food and Drug Administration (FDA) will hold a virtual Patient Engagement Advisory Committee (the Committee) meeting on Patient-Centered Informed Consent in Clinical Study on October 30 from 10:00-5:00 ET.  Click here for more information and to register.

Join the Ross K MacNeill Foundation for a special evening in support of Pediatric Brain Cancer research on Friday, November 1st at the Field Museum in Chicago.  Click here for information and tickets.

Please attend the BORN GALA 2024, hosted by the Neev Kolte & Brave Ronil Foundation at the Blackhawk Museum in Danville, California  on November 17th, 2024.  Click here for more information and to register.

Take Action:

NIH recently announced a Request for Information to gather community input on additional proposed actions to accelerate the career transition of postdoc scholars into thriving biomedical research careers. Please note that feedback will be accepted electronically until October 23, 2024.  See the Open Mike Blog for additional information.

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