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CAC2 Webinar–Landmark Lightings and Proclamations

February 17, 2016
Collaborative Achievements, Webinars No comments yet
In this All-Member webinar for February 2015, CAC2 welcomed presenters Tony Stoddard (Sophia's Fund) and Neal Rourke (International Individual Member). Tony and Neal presented an interactive webinar to encourage dialogue between our members about Landmark Lightings and Proclamations.  They shared their past successes and techniques to help our members reach awareness goals in their communities. Read more

CAC2 Webinar–Funding Research: Discussion on Charity Practices

February 10, 2016
Webinars No comments yet
The CAC2 Research Interest Group February meeting was an interactive webinar to encourage dialogue between our members about aspects of charities funding research.  CAC2 Member Jay Scott from Alex's Lemonade Sand Foundation led an open conversation about our experiences, ideas, and practices. Jay and members on the call discussed the elements of funding research and shared experience, ideas, and best practices: setting priorities soliciting proposals selecting scientific review panels orchestrating reviews selection of projects making awards reporting requirements evaluating research funded collaboration among charities https://youtu.be/M940GmSWtO4 Read more

CAC2 Webinar–Scientific Meetings: Tapping the Resource

January 20, 2016
Webinars No comments yet
Attending scientific meetings is a fantastic opportunity for advocates and funders of pediatric cancer research.  CAC2 member Donna Ludwinski (Solving Kids Cancer), presented our January webinar as a primer to help you navigate these types of opportunities: Topics covered included getting the most out of​ scientific meetings list of major meetings of interest planning objectives networking reporting sponsorship Additionally, CAC2 member Phil Renna (Christina Renna Foundation, Inc.) updated everyone on our CAC2 Research Conference planned for this fall. This information will help all of our members get the most out of this fall's research conference and any other research conferences they may have the opportunity to attend. https://youtu.be/bq0E40dhpIE Read more

CAC2 Webinar–Psychosocial Standards of Care for Children with Cancer and Their Families

December 19, 2015
Webinars No comments yet
In this All-Member webinar for December 2015, CAC2 welcomed presenters: Dr. Lori Wiener--Co-director of the Behavioral Science Core and Head of the Psychosocial Support and Research Program at the pediatric oncology branch of the National Cancer Institute Dr. Mary Jo Kupst--Pediatric psychologist and Emerita Professor of Pediatrics at the Medical College of Wisconsin Dr. Anne E. Kazak--Co-director of the Center for Healthcare Delivery Science at Nemours Children’s Health System, A. I. du Pont Hospital for Children Psychosocial Standards of Care for Children with Cancer and Their Families will be published in December 2015 in a special supplement of Pediatric Blood & Cancer. [...] Read more

CAC2 Webinar–Childhood Cancer Survivorship: The Consequences of Cure

November 20, 2015
Webinars No comments yet
We were pleased to host guest panelist Dr. Greg Armstrong of St. Jude Children's Research Hospital who provided our November All-Member webinar. In just half a century, we have witnessed a remarkable improvement in survival of childhood cancer. In the 1960’s less than 30-40% of children diagnosed with a malignancy would achieve five-year survival. Now, over 80% of children diagnosed with cancer will become five-year survivors of their disease. As a result, 2013 it was estimated that there were over 420,000 survivors of childhood cancer in the United States, and that by the year 2020 we would cross the threshold of [...] Read more

CAC2 Webinar–Analyzing the International Cancer Research Portfolio (ICRP)

August 19, 2015
Webinars No comments yet
On Wednesday, August 19, 2015, CAC2 hosted an All-Member webinar featuring guest panelist Lynne Davies discussing, exploring, and explaining: Analyzing the International Cancer Research Portfolio (ICRP). One of our CAC2 projects, grounded in our Research Interest pillar, was to provide a way to keep track of research funded by our members. The result was that we chose to join and participate in the International Cancer Research Partnership (ICRP). The ICRP portfolio contains over 70,000 historical and current awards from funding organizations in the US, Canada, Europe, Japan and Australia. This webinar demonstrates how to analyze and interpret the information in [...] Read more

CAC2 Webinar–Lynne Davies, ICRP Funded Research Data Base Project–SLIDE DECK

August 14, 2015
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The August All-Member call was dedicated to learning more about the International Cancer Research Partnership (ICRP) Database, of which CAC2 will soon be a part.  The ICRP houses over 63,000 research projects that are uniformly coded and have a searchable interface (ICRPartnership.org).  Lynne Davies, the Operations Manager at ICRP, joined us from the UK; she started the call by reviewing the goals of the ICRP, membership advantages and details about uploading funded research projects.  Like CAC2, ICRP is a member-centric organization constantly seeking and evaluation the needs of its members, including enhancing the coding system in order for members to [...] Read more

CAC2 Special Community Webinar–G-CSF, Cancer Stem Cells and Relapsed Neuroblastoma: A New Study Opens Up Questions and Opportunities

May 27, 2015
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During our May All-Member and Community webinar,  Scott Kennedy & Donna Ludwinski of Solving Kids' Cancer moderated for our guest presenter, Dr. Jason Shohet addressed the findings of a new study, "G-CSF Promotes Neuroblastoma Tumorigenicity and Metastasis via STAT3-dependent Cancer Stem Cell Activation" published in the journal Cancer Research that identified a potential link between the use of the ​growth factor's effect on cancer stem-like cells and progression and recurrence of neuroblastoma.  As senior author of the study, Dr. Shohet discussed the relevance of these findings within the current context of neuroblastoma patient care as well as the future treatment implications. Topics covered include: What [...] Read more

CAC2 Webinar–Incorporating Genomics into Pediatric Cancer Trials

March 24, 2015
Webinars No comments yet
During our March All-Member and Community webinar, our guests discussed the findings and outcomes of the February NCI scientific workshop dedicated to childhood cancer genomics. On February 4 and 5, the National Cancer Institute hosted a scientific workshop focused on childhood cancer genomics. Scientist and researchers from around the world met to discuss the state of genomics research in pediatric cancer and what opportunities exist for research going forward. The Coalition Against Childhood Cancer and the Alliance for Childhood Cancer co-hosted this debriefing webinar featuring workshop attendees, Dr. Greg Aune (NCI-NCRA, pediatric oncologist-UTSA, and pediatric cancer survivor), Susan Weiner (Children’s Cause for [...] Read more

CAC2 Webinar–Advancing the Quality of Life: Strategic Agenda for Childhood Cancer Through Innovation, Ingenuity, and Advocacy

February 24, 2015
Webinars No comments yet
During our February All-Member webinar our guest, Rebecca Kirch, Director of Quality of Life and Survivorship for the American Cancer Society, discussed and answered questions about the quality of life strategic agenda and its specific relevance for childhood cancer, including information about the upcoming Institute of Medicine March workshop on comprehensive childhood cancer care. Research has improved treatments and boosted survival in some types of pediatric cancer, but treatment toxicities still cause a majority of children to experience distressing side effects and late effects — conditions that often cause significant suffering that continues into adulthood and can last a lifetime. [...] Read more
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