CAC2 Childhood Cancer Community News Digest (August 30-September 5)

Assorted news from the last week:

The White House issued a proclamation for Childhood Cancer Awareness Month on September 1.

Canadian gold illumination!

For every post that uses #KickChildhoodCancer on Twitter, Continental Tire will donate $1 to Children Oncology Group (up to $50,000) from September 1 – 30, 2021.

Amazon Goes Gold helps fund pediatric cancer research, and is marking the campaign’s fifth year by highlighting important research over the last five years.

Systematic ongoing follow-up of pediatric cancer patients who survive their disease is important to provide for early detection of and intervention for potentially serious late-onset complications. In addition, health counseling and promotion of healthy lifestyles are important aspects of long-term follow-up care to promote risk reduction for physical and emotional health problems that commonly present during adulthood.

In an effort to raise awareness for Childhood Cancer Awareness Month in September, Peach Bowl, Inc. highlighted the cause during each of its Chick-fil-A Kickoff Games featuring (1) Alabama vs. (14) Miami Sept. 4 and Louisville vs. (25) Ole Miss Sept. 6.

Upcoming Webinars and Online Opportunities:

The second season of Sanjay Gupta’s podcast “Chasing Life” will kick off on September 7 by delving into the topic of pediatric cancer.  You can access the podcast here: https://www.cnn.com/audio/podcasts/chasing-life.

A public webinar, hosted by the CCDI Engagement Committee, will provide an overview of CCDI, including foundational goals and vision, as well as an update on two programs within CCDI, the National Childhood Cancer Registry and the Molecular Characterization Protocol. Questions can be submitted in advance to or during the webinar via the chat feature.  Registration Link.

CureSearch is pleased to continue the 2021 CureSearch Virtual Summit Series with the fourth session: Biorepository Form and Function on September 14, from 11:00-2:00ET.  This session will provide insight into biorepositories, specifically how tissue is acquired, the types of samples and data that they house, and their accessibility.  An open Q&A session will accompany the robust panel discussion.

The FDA Oncology Center of Excellence presents Conversations on Cancer – The Future of Childhood Cancer Drug Development: Is the Sky the Limit? Join this informal panel discussion exploring personal perspectives from survivors, clinicians, caregivers, and pediatric patient advocates on the impact of childhood cancer from 1:00-2:30 ET on September 16.

The Ohio Department of Health has opened registration for the first annual Childhood Cancer Summit to be held ONLINE Sept 16-17. This FREE event is family-focused and includes a range of topics that are important to patients and caregivers at all stages of this experience, regardless of where you live.

ICON Pediatrics Team & CISCRP present, Advocating for Yourself or Your Child in a Clinical Trial, a 15-minute Flash webinar on September 22nd at 12PM EDT.  You can also access this month’s Flash webinar:  Treating Adolescent & Young Adult Populations, Cancer Treatment POptions, and the RACE (Research to Accelerate Cures & Equity) Act for Children.

A recording of the Pediatric Brain Tumor Foundation webinar Engaging in Advocacy: How to Amplify the Power of Your Story, will be linked here as soon as it is available.  Presenters for this webinar include Sarah Milberg, Director of Government Relations and Advocacy at St. Baldrick’s Foundation, Susannah Koontz at Koontz Oncology Consulting, and Rene Marsh, CNN’s government regulation and transportation correspondent.

Both in-person and virtual CureFest registration is now open!  Make your plans for September 25-26.