CC Community News Digest (June 1-7)

Assorted news from the last week:

Late Effects Surveillance System-Study Scan is an online publication that follows survivorship issues.  Click here for the latest edition, which includes several abstracts from late-effects research studies.

New Research about Ewing Sarcoma:

• Researchers have discovered a gene, OTUD7A, that impacts the development of Ewing sarcoma, a bone cancer that occurs mainly in children. They have also identified a compound that shows potential to block OTUD7A protein activity.
• A new discovery in Ewing sarcoma has uncovered the potential to prevent cancer cells from spreading beyond their primary tumor site. Researchers have learned that Ewing sarcoma cells — and likely other types of cancer cells — are able to develop a shield that protects them from the harsh environment of the bloodstream and other locations as they search for a new place to settle, or metastasize.

Upcoming Webinars and Online Opportunities:

Join us for the 2021 CAC2 Annual Summit, a robust virtual meeting to unite CAC2 members and guests to advance our work for the childhood cancer community:  Thursday, June 24th noon – 5:00 pm ET and Friday, June 25th noon – 4:00 pm EDT.  Register here.  Read more about the Summit here.

ACCELERATE will host the 2^nd episode of their webinar series Orphan Drug Regulations on June 29 at 11:00 EDT.  It will include topics such as

• How does the orphan medicines regulation work in EU, US and Japan?
• How did it impact the field of rare diseases? What are the issues now in Research & Development?
• The oncology paradox: Why did the current adult-based approach not work for childhood cancers? How can we improve the situation to better target the ‘young patients’ needs?

Both in-person and virtual CureFest registration is now open!  Make your plans for September 25-26.

• Ann Graham (MIB Agents)

CAC2 member Janet Demeter (Jack’s Angels)  hosts Childhood Cancer Talk Radio.  Follow that link to access past episodes.  CAC2 Board Member Mariah Forster Olson (Neuroblastoma Children’s Cancer Society) is the featured guest last week.